Garrity Brigid M, Singer Sara J, Ward Erin, Bastianelli Lucia, Berry Jay G, Crofton Charis, Glader Laurie, Casto Elizabeth L, Cox Joanne E
Division of General Pediatrics, Boston Children's Hospital, Boston, MA, USA.
Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA.
J Patient Exp. 2020 Dec;7(6):1369-1377. doi: 10.1177/2374373520972570. Epub 2020 Dec 2.
Family perspectives on short-term recovery after spinal fusion for neuromuscular scoliosis are essential for improving patient outcomes. Semistructured interviews were conducted with 18 families of children within 3 months after spinal fusion performed August 2017 to January 2019 at a children's hospital. Interviews were recorded, transcribed, and coded line-by-line by 2 independent reviewers using grounded theory to identify themes. Five themes emerged among families when reflecting back on the postoperative recovery: (1) communicating and making shared decisions regarding postoperative care in a patient- and family-centered manner, (2) setting hospital discharge goals and being ready for discharge, (3) planning for transportation from hospital to home, (4) acquiring supports for caregiving at home after discharge, and (5) anticipating a long recovery at home. Important family perceptions were elicited about the recovery of children from spinal fusion for neuromuscular scoliosis that will inform better perioperative planning for clinicians, future patients, and their families.
了解神经肌肉型脊柱侧弯患者脊柱融合术后短期恢复的家庭观点对于改善患者预后至关重要。2017年8月至2019年1月期间，在一家儿童医院对18名接受脊柱融合手术的儿童的家庭进行了半结构化访谈，访谈在术后3个月内进行。访谈进行了录音、转录，并由2名独立评审员逐行编码，采用扎根理论确定主题。在回顾术后恢复情况时，家庭中出现了五个主题：（1）以患者和家庭为中心的方式就术后护理进行沟通并做出共同决策；（2）设定出院目标并为出院做好准备；（3）规划从医院到家的交通；（4）出院后在家中获得护理支持；（5）预计在家中需要长时间恢复。关于神经肌肉型脊柱侧弯患者脊柱融合术后儿童恢复情况，引出了重要的家庭观念，这将为临床医生、未来患者及其家庭更好的围手术期规划提供参考。
