Paul Baerwald School of Social Work & Social Welfare, Hebrew University of Jerusalem, Jerusalem, Israel.
Israel Unlimited, JDC, Jerusalem, Israel.
Fam Process. 2021 Dec;60(4):1437-1452. doi: 10.1111/famp.12639. Epub 2021 Jan 27.
Traditionally, studies on parenting children with disabilities have focused mostly on experiences of stress. More recently, studies have turned to examining parental coping from the perspective of strength, focusing on the ability to achieve growth and empowerment. Most studies, however, have not examined parental activism as a coping mechanism. Based on the Double ABCX Model of Family Adjustment and Adaptation, this study, conducted in Israel, assessed the adequacy of a theoretical model linking stress, coping, activism, growth, and empowerment of parents of children with disabilities. Activist and nonactivist parents (N = 123) completed a structured questionnaire that included measures of stress, coping, empowerment, and growth. Stress was negatively associated with empowerment and growth, whereas problem-focused coping and parental activism were positively associated with empowerment and growth. Activism was found to mediate the relationships between stress and growth and empowerment, with lower levels of stress being related to higher levels of activism, which was in turn correlated to higher levels of empowerment and growth. Parental activism, consisting of deconstructing problems faced by the family and demanding change in social discourse with a view toward inclusion, choice, rights, and equality, is a useful mechanism for parents in alleviating levels of stress and enhancing sense of empowerment and growth.
传统上,针对残疾儿童养育的研究主要集中在压力体验上。最近,研究从优势视角转向了父母的应对方式,重点关注实现成长和赋权的能力。然而,大多数研究并未考察父母的积极行动主义作为一种应对机制。本研究基于家庭调整与适应的双 ABCX 模型,在以色列进行,评估了一个将压力、应对、积极行动主义、成长和赋权联系起来的理论模型对残疾儿童父母的适用性。积极行动主义和非积极行动主义的父母(N=123)完成了一份结构化问卷,其中包括压力、应对、赋权和成长的测量。压力与赋权和成长呈负相关,而问题聚焦应对和父母积极行动主义与赋权和成长呈正相关。研究发现,积极行动主义在压力和成长与赋权之间的关系中起到了中介作用,较低的压力水平与较高的积极行动主义水平相关,而较高的积极行动主义水平又与较高的赋权和成长水平相关。父母的积极行动主义,包括解构家庭面临的问题以及要求在社会话语中做出改变,以实现包容、选择、权利和平等,是父母减轻压力水平、增强赋权感和成长感的有效机制。