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发病率管理和残疾预防 (MMDP) 门诊是否满足丝虫性淋巴水肿 (FLE) 患者的首要期望?

Does the morbidity management and disability prevention (MMDP) clinic serve the filarial lymphedema (FLE) patients' preeminent expectation?

机构信息

Unit of Clinical Epidemiology and Chemotherapy, Vector Control Research Centre, Indian Council of Medical Research, Pondicherry 605 006, India.

National Institute of Epidemiology (ICMR), Second Main Road, TNHB, Ayapakkam, Chennai 600 077, India.

出版信息

Trop Biomed. 2020 Mar 1;37(1):66-74.

Abstract

Advocacy and training on "Home care" for filarial lymphoedma (FLE) patients are provided through morbidity management and disability prevention (MMDP) clinic commonly known as filariasis clinic and clinical improvement is assessed by follow-up visits. While the physicians aim at reducing the recurrent ADL (coined as ADLA in 1997) episodes, the patients expect reduction in LE volume. The objective of the present study was to know whether the MMDP clinic serves the primary expectation of the FLE patients. LE patients who attended the clinic for at least four follow-up consultations and had LE volume measurements at three points of time during the one year period of observation were considered for analysis. Clinical assessment was done for LE grading and LE volume was measured by water displacement volumetry. Sixty-three patients who fulfilled the follow up criteria were included. It was observed that the median LE volume was 914ml (IQR 269 - 1935) at first visit of the observation period which reduced to 645ml (IQR 215- 1666) and 752ml (IQR 215 - 1720) at first and second follow-up visits respectively. Over all, in short span of one year, 21 of the 63 patients (33.3%) who visited MMDP clinic at least four times in a year were benefitted through the MMDP advocacy and the National filariasis control programme need to emphasise on the importance of follow up visits to FLE patients.

摘要

为丝虫病淋巴水肿(FLE)患者提供有关“家庭护理”的宣传和培训是通过发病率管理和残疾预防(MMDP)诊所进行的,通常称为丝虫病诊所,并通过随访评估临床改善情况。虽然医生的目标是减少复发性日常生活活动(ADL)(1997 年称为 ADLA)发作,但患者希望减少 LE 体积。本研究的目的是了解 MMDP 诊所是否满足 FLE 患者的主要期望。在观察期内至少进行了四次随访咨询,并在一年期间的三个时间点进行了 LE 体积测量的 LE 患者被认为适合进行分析。对 LE 分级进行临床评估,并通过排水体积测量法测量 LE 体积。符合随访标准的 63 名患者被纳入分析。观察到,在观察期的第一次就诊时,LE 体积中位数为 914ml(IQR 269-1935),在第一次和第二次随访就诊时分别降至 645ml(IQR 215-1666)和 752ml(IQR 215-1720)。总的来说,在短短一年的时间里,63 名至少四次访问 MMDP 诊所的患者中有 21 名(33.3%)通过 MMDP 宣传从中受益,国家丝虫病控制规划需要强调对 FLE 患者进行随访的重要性。

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