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“我得让她们安心”:乳腺癌患者如何获得社会支持的叙述

"I Had to Make Them Feel at Ease": Narrative Accounts of How Women With Breast Cancer Navigate Social Support.

作者信息

Wright Jaime D, Kroenke Candyce H, Kwan Marilyn L, Kushi Lawrence H

机构信息

Santa Clara University, Santa Clara, California, USA.

Kaiser Permanente Northern California, Oakland, California, USA.

出版信息

Qual Health Res. 2021 May;31(6):1056-1068. doi: 10.1177/1049732321989999. Epub 2021 Feb 28.

Abstract

Social scientific studies of social support predominantly focus on the positive associations between social support and emotional well-being. The negative aspects of social support have received much less attention. We conducted semi-structured interviews of women with breast cancer ( = 47) to examine the emotional strain associated with social support and how recipients navigate it in ways that protect themselves and their relationships. Based on our analysis of narratives of women's lived experiences of breast cancer, we found that social support can be perceived negatively and associated with experiences of emotional strain. Interviewees engaged in strategies of avoidance, information control, and cognitive reframing to minimize emotional strain. We applied the concept of emotion work to understand the complexity of emotional strain in this context. The findings highlight the difficulties of social support from a recipient's perspective and emphasize the importance of perception and agency in navigating this experience.

摘要

社会支持的社会科学研究主要关注社会支持与情绪健康之间的积极关联。社会支持的消极方面受到的关注要少得多。我们对47名乳腺癌女性进行了半结构化访谈,以研究与社会支持相关的情绪压力,以及接受者如何通过保护自己和人际关系的方式应对这种压力。基于我们对乳腺癌女性生活经历叙述的分析,我们发现社会支持可能被负面看待,并与情绪压力经历相关联。受访者采取了回避、信息控制和认知重构策略,以尽量减少情绪压力。我们运用情绪劳动的概念来理解这种情况下情绪压力的复杂性。研究结果从接受者的角度突出了社会支持的困难,并强调了认知和应对能力在应对这种经历中的重要性。

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