Department of Psychology, University of Bath, UK; Department of Psychology, University of Eastern Finland, Finland.
Department of Psychology, University of Eastern Finland, Finland.
J Pediatr Nurs. 2021 Sep-Oct;60:77-82. doi: 10.1016/j.pedn.2021.02.016. Epub 2021 Feb 27.
Caring for a chronically ill child can be stressful and requires additional care from parents. Parental mental health and stress may impact both parental and child wellbeing, leading to maladaptive parenting practices, and interference with illness management. The aim of the study was to explore the levels of anxiety and depression in parents of children born with esophageal atresia (EA) and to investigate whether parental anxiety and depression were associated with child's medical characteristics or with parental factors.
An international online survey was developed and disseminated to parents of children born with EA, aged 0-12 years, via EA patient charity social network sites. A one-way between subjects ANOVA and post hoc statistical analyses were used to examine differences in mean scores of parental anxiety and depression between sub-groups that described child's medical characteristics and parental characteristics.
A total of 240 parents completed the survey from 17 different countries. Of these, nearly 70% self-reported raised levels of anxiety, whilst 38% self-reported raised levels of depression. Statistically significant differences in mean scores of parental anxiety and depression were found between sub-groups that described the child's feeding problems, parental age, and perceived support for caring, caring stress and money matters.
Child's feeding problems related to esophageal atresia, and parental factors, such as younger age, perceived lack of support for caring, caring stress, and money worries, may contribute to the increased levels of parental anxiety and depression in parents of children born with EA.
照顾患有慢性病的儿童可能会带来压力，需要父母提供额外的照顾。父母的心理健康和压力状况可能会影响父母和孩子的健康，导致不良的育儿行为，并干扰疾病的管理。本研究的目的是探讨患有食管闭锁（EA）的儿童的父母的焦虑和抑郁水平，并研究父母的焦虑和抑郁是否与儿童的医疗特征或父母的因素有关。
通过 EA 患儿慈善社交网站，开发并向患有 EA 的 0-12 岁儿童的父母分发了一份国际在线调查。采用单因素方差分析（ANOVA）和事后统计分析来检验描述儿童医疗特征和父母特征的亚组之间父母焦虑和抑郁的平均得分差异。
共有来自 17 个不同国家的 240 位父母完成了这项调查。其中，近 70%的父母自我报告有焦虑水平升高的情况，而 38%的父母自我报告有抑郁水平升高的情况。描述儿童喂养问题、父母年龄、照顾感知支持、照顾压力和金钱问题的亚组之间，父母焦虑和抑郁的平均得分存在统计学上的显著差异。
与 EA 相关的儿童喂养问题以及父母年龄较小、感知缺乏照顾支持、照顾压力和经济担忧等因素，可能导致 EA 患儿的父母焦虑和抑郁水平升高。
