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Palliative care in pulmonary hypertension associated with congenital heart disease: systematic review and expert opinion.
ESC Heart Fail. 2021 Jun;8(3):1901-1914. doi: 10.1002/ehf2.13263. Epub 2021 Mar 3.
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[Pulmonary arterial hypertension in patients with congenital heart disease: current issues and health care situation].
Dtsch Med Wochenschr. 2013 Jun;138(23):1247-52. doi: 10.1055/s-0033-1343189. Epub 2013 May 29.
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A review of the management of pulmonary arterial hypertension associated with congenital heart disease.
Eur J Cardiovasc Nurs. 2012 Jun;11(2):239-47. doi: 10.1016/j.ejcnurse.2010.10.001. Epub 2012 Mar 5.
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Pulmonary hypertension related to congenital heart disease: a call for action.
Eur Heart J. 2014 Mar;35(11):691-700. doi: 10.1093/eurheartj/eht437. Epub 2013 Oct 29.
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How to evaluate patients with congenital heart disease-related pulmonary arterial hypertension.
Expert Rev Cardiovasc Ther. 2019 Jan;17(1):11-18. doi: 10.1080/14779072.2019.1550716. Epub 2018 Dec 6.
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The PAH patient's perspective.
Int J Cardiol Congenit Heart Dis. 2025 May 26;21:100596. doi: 10.1016/j.ijcchd.2025.100596. eCollection 2025 Sep.
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An interdisciplinary consensus approach to pulmonary hypertension in developmental lung disease.
Eur Respir J. 2024 Sep 26;64(3). doi: 10.1183/13993003.00639-2024. Print 2024 Sep.

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Determinants of Sudden Cardiac Death in Adult Patients With Eisenmenger Syndrome.
J Am Heart Assoc. 2020 Mar 17;9(6):e014554. doi: 10.1161/JAHA.119.014554. Epub 2020 Mar 15.
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Heart Failure in Adult Congenital Heart Disease: From Advanced Therapies to End-of-Life Care.
Can J Cardiol. 2019 Dec;35(12):1723-1739. doi: 10.1016/j.cjca.2019.07.626. Epub 2019 Jul 26.
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Congenital Cardiothoracic Surgeons and Palliative Care: A National Survey Study.
J Palliat Care. 2021 Jan;36(1):17-21. doi: 10.1177/0825859719874765. Epub 2019 Oct 9.
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Perspectives on advance care planning and palliative care among adults with congenital heart disease.
Congenit Heart Dis. 2019 May;14(3):403-409. doi: 10.1111/chd.12735. Epub 2018 Dec 21.
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Palliative care in pulmonary arterial hypertension: an underutilised treatment.
Eur Respir Rev. 2018 Dec 19;27(150). doi: 10.1183/16000617.0069-2018. Print 2018 Dec 31.
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EmPHasis-10 score for the assessment of quality of life in various types of pulmonary hypertension and its relation to outcome.
Eur J Prev Cardiol. 2019 Aug;26(12):1338-1340. doi: 10.1177/2047487318819161. Epub 2018 Dec 19.

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