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姑息治疗患者、其亲属和医疗保健专业人员的口腔护理体验:一项定性研究。

Oral Care Experiences of Palliative Care Patients, Their Relatives, and Health Care Professionals: A Qualitative Study.

出版信息

J Hosp Palliat Nurs. 2021 Jun 1;23(3):229-237. doi: 10.1097/NJH.0000000000000745.

Abstract

Oral symptoms in a growing number of palliative care patients are often neglected. Dental professionals are not always involved in palliative care. Oral care is often inadequately delivered to palliative care patients, while oral problems can affect the quality of life. A qualitative study was conducted to explore oral care experiences of palliative care patients, their relatives, and health care professionals (HCPs). Four patients, 4 relatives, and 4 HCPs were interviewed in a hospice. Transcripts were analyzed using thematic analysis and revealed 3 themes. Patients who were capable of performing oral care mainly brushed their teeth and looked after their dentures. Other care tended to be carried out by relatives and HCPs, adapted based on a person's level of consciousness. When describing the effects on oral health, relatives and HCPs tended to focus on xerostomia, whereas patients provided detailed accounts denoting the psychological and social impact of oral symptoms. Perceptions of enablers and barriers to oral care differed between groups. Patients reported lack of access to professional dental care and patients' fatigue were the main barriers to oral care. Nevertheless, there is great scope for further research into good oral care practices identified in this study and possible implementation in other settings.

摘要

越来越多的姑息治疗患者出现口腔症状,但往往被忽视。牙科专业人员并不总是参与姑息治疗。姑息治疗患者的口腔护理往往得不到充分实施,而口腔问题会影响生活质量。本研究采用定性研究方法,旨在探讨姑息治疗患者、患者亲属和医护人员(HCPs)的口腔护理体验。在一家临终关怀医院,对 4 名患者、4 名亲属和 4 名 HCPs 进行了访谈。采用主题分析对转录本进行分析,揭示了 3 个主题。能够进行口腔护理的患者主要刷牙和照顾义齿。其他护理通常由亲属和 HCPs 进行,根据患者的意识水平进行调整。在描述对口腔健康的影响时,亲属和 HCPs 往往侧重于口干,而患者则详细说明口腔症状的心理和社会影响。不同群体对口腔护理的促进因素和障碍的看法存在差异。患者报告缺乏专业牙科护理的机会,以及患者的疲劳是口腔护理的主要障碍。然而,本研究确定了良好的口腔护理实践,并有可能在其他环境中实施,仍有很大的研究空间。

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