Singh Rajiv, Clarke Alison
Department of Rehabilitation Medicine, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.
School of Health and Related Research, The University of Sheffield, Sheffield, UK.
BMJ Neurol Open. 2020 Jun 21;2(1):e000015. doi: 10.1136/bmjno-2019-000015. eCollection 2020.
BACKGROUND/OBJECTIVE: Spasticity is a complex and common condition but there is a lack of 'real-world' data on goal setting and spasticity treatment, as well as identifying those features that might be associated with goal achievement. Our aim was to provide such data.
Prospective attenders at a multi-disciplinary spasticity clinic over 2 years followed for consecutive appointments. Patient demographics and doses of botulinum toxin injected were documented. Main outcome was achievement of a primary goal but secondary goals were also recorded. Independent variables were examined for association to the outcome.
A total of 606 goals were set in 224 patients. The majority (75.2%) were achieved with similar levels across active (72.5%), passive (75.7%) and pain (78.6%) goals. However, in terms of the primary goal, active primary goals were achieved less frequently (59.7%) than non-active primary goal (74.2%). A logistic regression confirmed that this was the only independent variable associated with primary goal achievement. The majority of patients (61.6%) required changes to their treatment between appointments, irrespective of time since diagnosis, age or aetiology.
Most goals set in spasticity clinic can be achieved irrespective of type of goal. However, active goals may be harder to accomplish when they are set as a primary goal. This may reflect the desire of individuals to prioritise a desirable goal rather than one that is achievable. While goal setting is important in the management of spasticity patients, very few patient or treatment factors are associated with outcome prediction. Further work needs to identify features that may predict successful outcome.
背景/目的:痉挛是一种复杂且常见的病症,但缺乏关于目标设定和痉挛治疗的“真实世界”数据,以及确定那些可能与目标达成相关的特征。我们的目的是提供此类数据。
对一家多学科痉挛诊所连续两年的前瞻性就诊者进行连续随访。记录患者人口统计学资料和注射肉毒杆菌毒素的剂量。主要结局是主要目标的达成,但次要目标也进行了记录。检查自变量与结局之间的关联。
224例患者共设定了606个目标。大多数(75.2%)目标得以实现,主动(72.5%)、被动(75.7%)和疼痛(78.6%)目标的达成水平相似。然而,就主要目标而言,主动主要目标的达成频率(59.7%)低于非主动主要目标(74.2%)。逻辑回归证实这是与主要目标达成相关的唯一自变量。大多数患者(61.6%)在就诊期间需要调整治疗,无论诊断后的时间、年龄或病因如何。
痉挛诊所设定的大多数目标无论目标类型如何均可实现。然而,当主动目标被设定为主要目标时可能更难实现。这可能反映了个体优先考虑理想目标而非可实现目标的愿望。虽然目标设定在痉挛患者的管理中很重要,但很少有患者或治疗因素与结局预测相关。需要进一步开展工作以确定可能预测成功结局的特征。