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一种新的衡量父母对孩子健康过度担忧的指标:代理健康焦虑量表(HAPYS)的开发。

A new measure of excessive parental worries about children's health: Development of the Health Anxiety by Proxy Scale (HAPYS).

机构信息

Department of Child and Adolescent Psychiatry, Aarhus University Hospital, Psychiatry, Aarhus, Denmark.

Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.

出版信息

Nord J Psychiatry. 2021 Oct;75(7):523-531. doi: 10.1080/08039488.2021.1900389. Epub 2021 Mar 16.

Abstract

OBJECTIVE

Health anxiety by proxy is a newly introduced term to describe parents' experience of excessive and unpleasant worries about their child's health. This article describes the development of a new measure, the Health Anxiety by Proxy Scale (HAPYS), for systematic assessment of health anxiety by proxy.

METHOD

The development of the HAPYS was performed over three phases. (1) Patients clinically assessed to have health anxiety by proxy participated in semi-structured interviews to elaborate their experience of worries regarding their child's health and their related behaviours, and to examine the face validity of items in an existing questionnaire: 'Illness Worry Scale - parent version'. (2) Based on the findings from Phase 1 the project group and a panel of experts selected and formulated questionnaire items and scoring formats. (3) The HAPYS was pilot-tested twice using cognitive interviewing with healthy parents and parents with health anxiety by proxy followed by further adjustments.

RESULTS

The final version of HAPYS consists of 26 items characteristic of health anxiety by proxy and of an impact section with five items.

CONCLUSION

Based on the pilot testing the HAPYS showed good face and content validity. It holds the potential to be a valid questionnaire to help clinicians across health care settings assess parents suffering from health anxiety by proxy.

摘要

目的

代理健康焦虑是一个新引入的术语,用于描述父母对子女健康过度和不愉快的担忧。本文描述了一种新的测量工具——代理健康焦虑量表(HAPYS)的开发,用于系统评估代理健康焦虑。

方法

HAPYS 的开发分三个阶段进行。(1)临床评估为有代理健康焦虑的患者参加半结构化访谈,详细说明他们对子女健康的担忧及其相关行为,并检验现有问卷“疾病担忧量表-父母版”中项目的表面有效性。(2)基于第 1 阶段的研究结果,项目组和专家组选择并制定了问卷项目和评分格式。(3)使用认知访谈对健康父母和有代理健康焦虑的父母进行了两次 HAPYS 的预测试,随后进行了进一步的调整。

结果

HAPYS 的最终版本由 26 个与代理健康焦虑特征相关的项目和一个包含 5 个项目的影响部分组成。

结论

基于预测试,HAPYS 表现出良好的表面和内容有效性。它有可能成为一种有效的问卷工具,帮助医疗保健环境中的临床医生评估患有代理健康焦虑的父母。

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