Mood Disorder Unit, Psychiatric Specialties Service, Geneva University Hospital, Rue de Lausanne 20, 1201, Geneva, Switzerland.
Department of Psychiatry, University of Geneva, Geneva, Switzerland.
Community Ment Health J. 2022 Jan;58(1):179-192. doi: 10.1007/s10597-021-00809-6. Epub 2021 Mar 9.
Trying to cope with stigma by association (SBA) often results in behaviors leading to social isolation and withdrawal. This study aimed at exploring the stigma-related experiences of family members of persons living with bipolar disorder (PW-BD). A semi-structured interview was conducted with relatives of PW-BD. Open-ended questions addressed three issues: awareness of public stigma of bipolar disorder, experiences of associative stigma, and ways of coping with experiences of SBA. Data were collected from a purposive sample of 21 family members. Experiences of SBA were specifically related to the different family roles. Parents had to deal with responsibility, partners with the choice of staying or not, and siblings with "a sort of duty." These specific prejudices enhanced specific coping strategies. This is the first study to highlight specific issues and coping from the perspective of family members. Based on these findings, specific targeted interventions could be developed.
通过关联来应对污名化（SBA）通常会导致社交孤立和退缩等行为。本研究旨在探讨双相情感障碍患者（PW-BD）家属的与污名相关的经历。对 PW-BD 的亲属进行了半结构化访谈。开放性问题涉及三个问题：对双相情感障碍公众污名的认识、关联污名的经历，以及应对 SBA 经历的方式。数据来自于 21 名有目的的家庭成员样本。关联污名的经历与不同的家庭角色具体相关。父母必须承担责任，伴侣必须做出是否留下的选择，而兄弟姐妹则有“一种责任”。这些具体的偏见增强了特定的应对策略。这是首次从家庭成员的角度强调特定问题和应对方法的研究。基于这些发现，可以制定特定的有针对性的干预措施。
