Suppr超能文献

COVID-19封锁期间挪威人的远程团队协作管理

Remote Teamwork Management of NORSE During the COVID-19 Lockdown.

作者信息

Cossu Alberto, Lo Barco Tommaso, Darra Francesca, Fontana Elena, Fiorini Elena, Marangone Martina, Biban Paolo, Dalla Bernardina Bernardo, Cantalupo Gaetano

机构信息

Child Neuropsychiatry (FD, TLB, FD, GC), Department of Surgical Sciences, Dentistry, Gynecology and Pediatrics, University of Verona; Clinical and Experimental Medicine PhD Program (TLB), University of Modena and Reggio Emilia; Child Neuropsychiatry Unit (FD, E. Fontana, E. Fiorini, MM, GC), and Pediatric Intensive Care Unit (PB), University-Hospital of Verona; and Center for Research on Epilepsies in Pediatric Age (CREP) (BDB), Verona, Italy.

出版信息

Neurol Clin Pract. 2021 Apr;11(2):e170-e173. doi: 10.1212/CPJ.0000000000001027.

Abstract

New-onset refractory status epilepticus (NORSE) is rare condition, and sharing knowledge is vital in its management, based on strict collaboration between multiple specialists, continuous EEG (c-EEG) monitoring, and prompt therapy modification. The coronavirus disease 2019 (COVID-19) pandemic challenged many of these established practices because of "social distancing" measures, making it necessary to work around physical restrictions. We report a case of a 10-year-old with NORSE admitted in a pediatric intensive-care unit and monitored with c-EEG and amplitude-integrated EEG. The monitoring interface was livestreamed using videoconference web-based platforms allowing remote viewing. Multiple daily web meetings took place between team members, where real-time therapy response was evaluated and confronted with medium-term trends in the epileptic activity, dictating further treatment and diagnostic steps. In addition to the known use of telemedicine in chronic conditions, we report how its use can be exploited to treat urgent conditions such as NORSE. By taking advantage of new tools and virtual environments, we were able to share treatment and diagnostic decisions and guarantee real-time therapy adjustments and a coherent course in treatment despite restrictions necessary for the COVID-19 pandemic. The constant specialist monitoring and the coherent and on-time communication of the patient's condition relieved the family stress, usually complained in these situations.

摘要

新发难治性癫痫持续状态(NORSE)是一种罕见病症,基于多学科专家的密切协作、持续脑电图(c-EEG)监测以及及时调整治疗方案,分享相关知识对其管理至关重要。2019年冠状病毒病(COVID-19)大流行因“社交距离”措施对许多既定做法构成了挑战,使得有必要突破物理限制开展工作。我们报告了一例10岁NORSE患儿,入住儿科重症监护病房,接受c-EEG和振幅整合脑电图监测。监测界面通过基于网络会议的平台进行直播,实现远程查看。团队成员每天多次召开网络会议,评估实时治疗反应,并结合癫痫活动的中期趋势,据此决定进一步的治疗和诊断步骤。除了远程医疗在慢性病治疗中的已知应用外,我们还报告了如何利用其治疗NORSE等急症。通过利用新工具和虚拟环境,尽管COVID-19大流行需要采取限制措施,我们仍能够分享治疗和诊断决策,确保实时调整治疗方案并保证治疗过程连贯。持续的专家监测以及关于患者病情的连贯且及时的沟通缓解了通常在这些情况下困扰家属的压力。

相似文献

1
Remote Teamwork Management of NORSE During the COVID-19 Lockdown.
Neurol Clin Pract. 2021 Apr;11(2):e170-e173. doi: 10.1212/CPJ.0000000000001027.
4
Intravenous immunoglobulin response in new-onset refractory status epilepticus (NORSE) COVID-19 adult patients.
J Neurol. 2021 Oct;268(10):3569-3573. doi: 10.1007/s00415-021-10468-y. Epub 2021 Mar 11.
5
Clinical presentation of new onset refractory status epilepticus in children (the pSERG cohort).
Epilepsia. 2021 Jul;62(7):1629-1642. doi: 10.1111/epi.16950. Epub 2021 Jun 6.
6
Limbic and new onset refractory tonic status epilepticus (NORSE) in anti-NMDAR encephalitis.
Clin Neurophysiol Pract. 2017 Jul 1;2:140-143. doi: 10.1016/j.cnp.2017.06.003. eCollection 2017.
8
New onset refractory status epilepticus (NORSE).
Seizure. 2019 May;68:72-78. doi: 10.1016/j.seizure.2018.09.018. Epub 2018 Sep 29.
9
A favorable outcome of intensive immunotherapies for new-onset refractory status epilepticus (NORSE).
J Intensive Care. 2018 Jul 31;6:43. doi: 10.1186/s40560-018-0315-7. eCollection 2018.
10
Jamestown Canyon encephalitis with NORSE and electrographic response to ribavirin: a case report.
Epilepsia Open. 2018 Apr 17;3(2):286-289. doi: 10.1002/epi4.12113. eCollection 2018 Jun.

本文引用的文献

3
Communication Challenges: A Spotlight on New-Onset Refractory Status Epilepticus.
Mayo Clin Proc. 2019 May;94(5):857-863. doi: 10.1016/j.mayocp.2018.12.004. Epub 2019 Mar 29.
4
New onset refractory status epilepticus (NORSE).
Seizure. 2019 May;68:72-78. doi: 10.1016/j.seizure.2018.09.018. Epub 2018 Sep 29.
7
Seizure burden is independently associated with short term outcome in critically ill children.
Brain. 2014 May;137(Pt 5):1429-38. doi: 10.1093/brain/awu042. Epub 2014 Mar 4.
8
The science and economics of improving clinical communication.
Anesthesiol Clin. 2008 Dec;26(4):729-44, vii. doi: 10.1016/j.anclin.2008.07.010.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验