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青少年自闭症女孩在主流和专业资源班中的“伪装”:女孩、母亲和教育者的观点。

"Camouflaging" by adolescent autistic girls who attend both mainstream and specialist resource classes: Perspectives of girls, their mothers and their educators.

机构信息

UCL Institute of Education, UK.

Aquila DCAT, UK.

出版信息

Autism. 2021 Oct;25(7):2074-2086. doi: 10.1177/13623613211012819. Epub 2021 May 9.

Abstract

There are a range of different types of schools that support children diagnosed with autism, including mainstream schools (where pupils are taught in general classrooms) and specialist schools (where pupils are exclusively taught alongside other children with special educational needs). An intermediary option involves resource bases attached to mainstream schools, which enable children to transition between mainstream and specialist educational settings. Autistic girls use a variety of strategies to negotiate the expectations and demands of school life. One of these strategies is known as camouflaging. This involves 'hiding' autism-based behaviours and developing ways to manage social situations, with the aim of fitting in with others. Research has shown that camouflaging can help to meet social expectations and friendships, but it can also result in challenges, including exhaustion and anxiety. In this study, we conducted detailed interviews with eight autistic girls, their parents and their school staff. The results showed that the girls tried to use camouflaging strategies to hide their autism and learning needs, especially within mainstream classrooms. Their camouflaging was often unsuccessful, which affected their relationships and sense of belonging. They also found camouflaging exhausting and distressing, which may (when combined with the demands of the classroom) affect their relationships, learning and mental health. This research provides important implications for supporting autistic girls who attend resource bases. These focus around increasing awareness of camouflaging and ways to support autistic girls, so they are included and able to fully participate and learn within school.

摘要

有一系列不同类型的学校为被诊断患有自闭症的儿童提供支持,包括主流学校(学生在普通教室接受教育)和专门学校(学生与其他有特殊教育需求的儿童一起接受教育)。一种中间选择是在主流学校附属的资源基地,这使孩子们能够在主流和专门教育环境之间过渡。自闭症女孩使用各种策略来应对学校生活的期望和要求。其中一种策略称为伪装。这涉及“隐藏”自闭症相关行为,并发展管理社交情况的方法,目的是与他人融洽相处。研究表明,伪装可以帮助满足社交期望和友谊,但也会带来挑战,包括疲惫和焦虑。在这项研究中,我们对八名自闭症女孩、她们的父母和学校工作人员进行了详细的访谈。结果表明,女孩们试图使用伪装策略来隐藏自己的自闭症和学习需求,尤其是在主流教室中。她们的伪装往往并不成功,这影响了她们的人际关系和归属感。她们还发现伪装让人疲惫和痛苦,这可能会(加上课堂的要求)影响她们的人际关系、学习和心理健康。这项研究为支持就读资源基地的自闭症女孩提供了重要启示。这些启示围绕着提高对伪装的认识以及支持自闭症女孩的方法,使她们能够被包容并在学校中充分参与和学习。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dae2/8419293/50b5fc6e4503/10.1177_13623613211012819-fig1.jpg

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