California State University, San Marcos, School of Nursing, University Hall, 333 S. Twin Oaks Valley Rd, San Marcos, CA 92096-0001, USA.
California State University, San Marcos, School of Nursing, University Hall, 333 S. Twin Oaks Valley Rd, San Marcos, CA 92096-0001, USA; CSU Shiley Institute for Palliative Care, USA.
Nurse Educ Pract. 2021 May;53:103075. doi: 10.1016/j.nepr.2021.103075. Epub 2021 May 2.
Children with chronic illnesses have improved physiological and psychosocial outcomes when they are able to identify and converse with others who experience the same challenges. Support groups are one way to enhance this interaction. To facilitate this process, student nurses worked with an interprofessional healthcare team, thalassemia patients, and their families to determine their support needs. The purpose of this article is to describe the innovative development and outcomes of the Thalassemia Patient Support Project, a community engagement partnership. This partnership provided a unique educational clinical experience for nursing students where they had an opportunity to help develop a support group and a pediatric to adult transitional care program. The outcomes could be used as a guide for community nursing education, in US and international settings.
当患有慢性病的儿童能够识别和与其他经历相同挑战的人交流时,他们的生理和心理社会结果会得到改善。支持小组是增强这种互动的一种方式。为了促进这一过程,护理专业的学生与跨专业医疗团队、地中海贫血症患者及其家属合作,确定他们的支持需求。本文的目的是描述地中海贫血症患者支持项目的创新发展和成果,这是一个社区参与伙伴关系。这种伙伴关系为护理专业的学生提供了一种独特的教育临床体验,使他们有机会帮助建立一个支持小组和一个儿科到成人的过渡护理计划。这些结果可以作为美国和国际社区护理教育的指南。