探讨患有慢性疾病的女性在怀孕期间和产后第一年使用健康和幸福措施的情况：对女性和医疗保健专业人员进行的定性访谈。

Exploring the use of health and wellbeing measures during pregnancy and the first year following birth in women living with pre-existing long-term conditions: qualitative interviews with women and healthcare professionals.

机构信息

Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Oxford, UK.

Harris Manchester College, Oxford, UK.

出版信息

BMC Health Serv Res. 2021 Jun 24;21(1):597. doi: 10.1186/s12913-021-06615-w.

DOI:10.1186/s12913-021-06615-w

PMID:34162368

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8223316/

Abstract

BACKGROUND

One way in which care for pregnant and postpartum women living with long-term health conditions (LTCs) may be improved is through the adoption of standardised measures to provide evidence of health outcomes and wellbeing from the woman's perspective.

AIM

The study explores the views of pregnant and postpartum women living with LTCs, and healthcare professionals to better understand the potential value of using standardised health and wellbeing measures within this patient population.

METHODS

Qualitative semi-structured telephone interviews were conducted to explore the perceived value of using measures with pregnant and postpartum women living with LTCs within maternity services. Participants were asked to provide feedback on three exemplar measures: the Long Term Conditions Questionnaire, the Wellbeing in Pregnancy Questionnaire and the EuroQol EQ-5D-5L instrument. Thematic analysis was used in the analysis of the transcripts.

RESULTS

Eleven women and 11 healthcare professionals took part in semi-structured interviews. Analysis identified five themes as relevant to the use of measures within maternity services: 1) Improving care, 2) Assessing outcomes, 3) Interpretation and application of data, 4) Engagement challenges and implementation and, 5) Women and healthcare professionals alignment.

CONCLUSIONS

Despite varying prior experience and expressing some questions about implementation, respondents were cautiously positive about the use of standardised health and wellbeing measures. Their use offers the opportunity for both affected women and healthcare professionals caring for them to collectively identify and assess important areas of unmet needs and improve outcomes. Incorporating the perspectives of women with LTC's will help bring awareness to elements of women centred care which health services may seek to address.

摘要

背景

改善患有长期健康状况（LTCs）的孕妇和产后妇女护理的方法之一是采用标准化措施，从女性的角度提供健康结果和幸福感的证据。

目的

本研究探讨了患有 LTCs 的孕妇和产后妇女以及医疗保健专业人员的观点，以更好地了解在这一患者群体中使用标准化健康和幸福感措施的潜在价值。

方法

采用定性半结构式电话访谈的方法，探讨了在产妇服务中使用患有 LTCs 的孕妇和产后妇女的标准健康和幸福感措施的感知价值。要求参与者就三种典型措施提供反馈：长期状况问卷、怀孕幸福感问卷和 EuroQol EQ-5D-5L 工具。使用主题分析对转录本进行分析。

结果

11 名妇女和 11 名医疗保健专业人员参加了半结构式访谈。分析确定了与在产妇服务中使用措施相关的五个主题：1）改善护理，2）评估结果，3）数据的解释和应用，4）参与挑战和实施，5）妇女和医疗保健专业人员的一致性。

结论

尽管受访者的先前经验各不相同，并对实施提出了一些问题，但他们对使用标准化健康和幸福感措施持谨慎的积极态度。这些措施的使用为受影响的妇女和照顾她们的医疗保健专业人员提供了机会，可以共同确定和评估未满足的重要需求领域，并改善结果。纳入患有 LTCs 的妇女的观点将有助于提高对以妇女为中心的护理的认识，卫生服务机构可能会寻求解决这些问题。