慢性肝病患儿营养调整方案对生活质量的评估
Evaluation of nutritional adjustment program on quality of life in children with chronic liver disease.
作者信息
Jafari Seyed Ali, Rezaeian Aramesh, Namjou Zahra, Ghayour-Mobarhan Majid, Ghaneifar Zahra
机构信息
Associate Professor of Pediatric Gastroenterology, School of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Evidence Based Care Research Center, Instructor Pediatric Nursing, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.
出版信息
J Educ Health Promot. 2021 May 20;10:141. doi: 10.4103/jehp.jehp_855_20. eCollection 2021.
BACKGROUND
Chronic liver disease is associated with decreased quality of life. The quality of life of children with chronic liver disease is related to their quality of life. Malnutrition is associated with death from cirrhosis, development of complications, and health-related quality of life in people with liver disease. Therefore, this study was conducted to determine the effect of nutritional adjustment program on quality of life in children with chronic liver disease.
MATERIALS AND METHODS
This clinical trial study was performed on children with chronic liver disease referred to the nutrition clinic of Ghaem Educational-Research Center in Mashhad in 2015. In this study, 77 children with chronic liver disease were randomly divided into two groups. Before and after the intervention, patients' quality of life was assessed with the PedsQL™ 4.0 generic core scale questionnaire. Data analysis was performed using SPSS16 software.
RESULTS
In the postintervention stage, the mean total score of quality of life in the experimental group was 1965.0 ± 270.9 and in the control group was 1522.5 ± 321.3 ( < 0.001). The difference in quality of life score of physical, social, and school performance in the two groups was significant.
CONCLUSION
According to the results of this study, it seems that interventions that can improve the quality of life of children with chronic liver disease can be an important step in advancing these people toward a healthy and quality life. As a result, it is possible to take steps to improve the quality of life of patients by encouraging children with liver disease and providing information about diet.
背景
慢性肝病与生活质量下降相关。患有慢性肝病的儿童的生活质量与其整体生活质量相关。营养不良与肝硬化导致的死亡、并发症的发生以及肝病患者的健康相关生活质量有关。因此，本研究旨在确定营养调整计划对慢性肝病儿童生活质量的影响。
材料与方法
本临床试验研究于2015年对转诊至马什哈德加姆教育研究中心营养门诊的慢性肝病儿童进行。在本研究中，77名慢性肝病儿童被随机分为两组。干预前后，使用儿童生活质量量表（PedsQL™）4.0通用核心量表问卷对患者的生活质量进行评估。使用SPSS16软件进行数据分析。
结果
在干预后阶段，实验组生活质量的平均总分是1965.0±270.9，对照组是1522.5±321.3（<0.001）。两组在身体、社交和学校表现方面的生活质量得分差异显著。
结论
根据本研究结果，似乎能够改善慢性肝病儿童生活质量的干预措施可能是推动这些人走向健康和优质生活的重要一步。因此，通过鼓励肝病儿童并提供饮食信息，有可能采取措施改善患者的生活质量。
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