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青少年慢性病患者的兄弟姐妹:照顾责任和心理社会功能。

Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning.

机构信息

School of Women's and Children's Health, 146817UNSW Sydney, Kensington, NSW, Australia.

Kids Cancer Centre, 63623Sydney Children's Hospital, Randwick, NSW, Australia.

出版信息

J Child Health Care. 2022 Dec;26(4):581-596. doi: 10.1177/13674935211033466. Epub 2021 Jul 16.

Abstract

Siblings of young people with chronic illness commonly undertake caring responsibilities for their affected brother/sister, which may encourage maturation, yet may also be perceived as a burden. Our study determined (1) siblings' caring responsibilities, (2) siblings' current emotional distress and psychosocial functioning, and (3) how siblings' caring responsibilities and psychosocial functioning related to familial relationships and coping strategies. Siblings completed questionnaires which contained Sibling Inventory of Behavior, Sibling Inventory of Differential Experiences, PedsQL, emotion thermometers, Brief COPE, and a checklist of caregiving responsibilities. We analyzed the data with -tests and multi-level models. Forty-five siblings (mean age = 15.40 years, = 3.31 years; 60.0% female) participated. Siblings who had caring responsibilities ( = 26, 57.8%) reported lower anxiety symptoms, lower need for help, greater use of problem-focused coping, and more companionship and teaching/directiveness with their affected brother/sister than siblings without caring responsibilities. Siblings reported lower psychosocial and physical functioning when they perceived their parents provided them with less affection than their affected brother/sister. Family-based psychosocial interventions may aim to improve the sibling-parent relationship (including expressing affection) and the sibling-sibling relationship. Future interventions may also focus on increasing siblings' use of problem-focused coping strategies.

摘要

年轻人的慢性病兄弟姐妹通常会承担照顾患病兄弟姐妹的责任,这可能会鼓励他们成长,但也可能被视为一种负担。我们的研究旨在确定:(1)兄弟姐妹的照顾责任;(2)兄弟姐妹当前的情绪困扰和心理社会功能;(3)兄弟姐妹的照顾责任和心理社会功能与家庭关系和应对策略的关系。兄弟姐妹完成了包含行为兄弟姐妹清单、差异体验兄弟姐妹清单、儿科生活质量问卷、情绪温度计、简要应对方式量表和照顾责任清单在内的问卷。我们使用 t 检验和多层次模型分析了数据。45 名兄弟姐妹(平均年龄=15.40 岁,标准差=3.31 岁;60.0%为女性)参与了研究。有照顾责任的兄弟姐妹(=26,57.8%)报告的焦虑症状较轻,对帮助的需求较低,更多地使用问题聚焦应对策略,与患病兄弟姐妹的陪伴和教导/指导更多。当兄弟姐妹认为他们的父母给予他们的关爱不如患病的兄弟姐妹时,他们的心理社会和身体功能就会下降。基于家庭的心理社会干预措施可能旨在改善兄弟姐妹与父母之间的关系(包括表达关爱)以及兄弟姐妹之间的关系。未来的干预措施也可能侧重于增加兄弟姐妹使用问题聚焦应对策略的能力。

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