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先天性心脏病产前诊断后心理困扰、婚姻调适和家庭动力学。

Psychological distress, dyadic adjustment and family dynamics after prenatal diagnosis of congenital heart disease.

机构信息

Facultat de Psicologia, Ciències de l'Educació i l'Esport Blanquerna, Universitat Ramon Llull, Barcelona, Spain.

Facultat de Psicologia, Ciències de l'Educació i l'Esport Blanquerna, Universitat Ramon Llull, Barcelona, Spain.

出版信息

An Pediatr (Engl Ed). 2022 Sep;97(3):179-189. doi: 10.1016/j.anpede.2021.08.001. Epub 2021 Sep 17.

DOI:10.1016/j.anpede.2021.08.001
PMID:34544666
Abstract

INTRODUCTION

Congenital heart disease (CHD) is one of the most frequent congenital diseases. When expectant fathers and mothers are informed of a CHD during pregnancy, they have to confront a series of individual and interpersonal psychological changes. The aim of the study was to evaluate the psychological impact of a prenatal diagnosis of CHD on expectant parents. The sample included 214 participants, mothers and their partners (case group, 57 pregnant women carrying a foetus with CHD and their partners and control group, 50 pregnant women and their partners).

METHOD

Administration of the BSI-18, the DAS and FACES-III following prenatal diagnosis.

RESULTS

Many parents (approximately 83.6%) went through stages of shock and denial in response to the diagnosis of disease that they had to confront and accept. At the individual level, 35.1% of fathers and 47.4% mothers had clinically significant scores of psychological distress. At the couple level, both fathers (77%) and mothers (82.4%) had expressed an idealized dyadic adjustment. Lastly, the perception of the family dynamic by 43.9% of fathers and 42.2% of mothers was in the mid range.

CONCLUSION

The results highlight the complexity of the initial stage that these couples were going through.

摘要

引言

先天性心脏病(CHD)是最常见的先天性疾病之一。当准父母得知胎儿患有 CHD 时,他们必须面对一系列个体和人际心理变化。本研究旨在评估 CHD 产前诊断对准父母的心理影响。样本包括 214 名参与者,母亲及其伴侣(病例组,57 名怀有 CHD 胎儿的孕妇及其伴侣;对照组,50 名孕妇及其伴侣)。

方法

在产前诊断后使用 BSI-18、DAS 和 FACES-III 进行评估。

结果

许多父母(约 83.6%)在面对和接受疾病诊断时经历了震惊和否认阶段。在个体层面上,35.1%的父亲和 47.4%的母亲表现出明显的心理困扰。在夫妻层面上,父亲(77%)和母亲(82.4%)都表现出理想化的夫妻适应。最后,43.9%的父亲和 42.2%的母亲认为家庭动态处于中等范围。

结论

研究结果强调了这些夫妇正在经历的初始阶段的复杂性。