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家庭凝聚力:对有年幼子女且父母患晚期癌症家庭中共同养育子女一方逐渐被忽视的关注:一项试点研究

Family Cohesiveness: A Dying Concern for the Coparent in Families With Parents With Advanced Cancer With Dependent Children: A Pilot Study.

作者信息

Caparso Cinzia, Benkert Ramona A

机构信息

Author Affiliations: College of Nursing, Wayne State University, Detroit, Michigan.

出版信息

Cancer Nurs. 2022;45(3):236-241. doi: 10.1097/NCC.0000000000001024.

Abstract

BACKGROUND

Dying concerns are thoughts expressed by a person diagnosed with a terminal illness or by an individual coping with the impending death of a loved one. Little is known about the dying concerns of parents with advanced cancer (PWACs) with dependent children, and even less is known about the dying concerns of the coparent. Understanding the PWACs' dying concerns for the coparent can contribute to the overall health of the family when faced with the death of a loved one.

OBJECTIVE

The aim of this pilot descriptive study was to explore the PWACs' perspective of their dying concerns for their coparent.

METHODS

Four PWACs were recruited from 2 oncology inpatient units from an urban community hospital within the same hospital system. Semistructured interviews were conducted, audio-recorded, and transcribed with 4 participants. Data analysis used directed content analysis.

RESULTS

Parents with advanced cancer expressed concern about the repercussions of advanced cancer on family cohesiveness. Three subthemes within this general structure were "My Weakest Link," "If I'm Not There, Where Do They Go?" and "Putting Up a Front."

CONCLUSIONS

Parents with advanced cancer have concerns beyond their role as a parent could make a difference in the overall health of the PWACs, but also the family unit. The PWACs' concerns are present but may be covered over by use of protective mechanisms to maintain family cohesiveness.

IMPLICATIONS FOR PRACTICE

Understanding dying concerns may enhance nurse-initiated communications between family members and healthcare providers to improve psychological distress and enhance family functioning.

摘要

背景

濒死担忧是指被诊断患有绝症的人或正在应对所爱之人即将离世的人所表达的想法。对于有未成年子女的晚期癌症患者(PWACs)的濒死担忧知之甚少,而对于其配偶的濒死担忧了解更少。了解PWACs对其配偶的濒死担忧有助于在面对亲人死亡时促进整个家庭的健康。

目的

本探索性描述性研究的目的是探讨PWACs对其配偶濒死担忧的看法。

方法

从同一医院系统内一家城市社区医院的2个肿瘤住院科室招募了4名PWACs。对4名参与者进行了半结构化访谈,进行了录音并转录。数据分析采用定向内容分析法。

结果

晚期癌症患者表达了对晚期癌症对家庭凝聚力影响的担忧。在这一总体结构中有三个子主题,即“我最薄弱的环节”、“如果我不在了,他们该何去何从?”以及“强装镇定”。

结论

晚期癌症患者的担忧超出了其作为父母的角色,这不仅会对PWACs的整体健康产生影响,也会影响家庭单元。PWACs的担忧确实存在,但可能会被用于维持家庭凝聚力的保护机制所掩盖。

对实践的启示

了解濒死担忧可能会加强护士发起的家庭成员与医疗服务提供者之间的沟通,以改善心理困扰并增强家庭功能。

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