School of Health, University of New England, Armidale, Australia.
Susan Wakil School of Nursing, University of Sydney, Sydney, New South Wales, Australia.
J Clin Nurs. 2022 Sep;31(17-18):2593-2604. doi: 10.1111/jocn.16081. Epub 2021 Oct 24.
This study aimed to understand the lived experience of rural mothers caring for a child with a chronic health condition and to understand their perspectives on the support, services and resources they identify as necessary to effectively manage caregiving.
Maternal caregivers in rural areas experience difficulty accessing specialist health care for their child and can also experience geographical and social isolation. Understanding the factors that enable these maternal caregivers to overcome the challenges and adversities faced is crucial to help nurses identify and facilitate avenues for support and resources.
This study employed a phenomenological design. The study is reported in line with Consolidated criteria for reporting qualitative research guidelines (COREQ).
Semi-structured interviews were conducted with 17 maternal caregivers in rural New South Wales, Australia, who had at least one child with a chronic health condition aged between 2-18 years. Data were collected from March to June 2018. Thematic analysis was used to develop a thematic framework. This paper reports on one of the major themes identified in this research, specifically maternal resilience.
Participants demonstrated maternal resilience by creating meaningful social connections, cultivating networks, developing problem-solving skills, enhancing their self-efficacy and finding a sense of purpose through hope and optimism. These strategies provide nurses insight into how some rural women overcome adversities associated with their maternal labour required in caring for a child with a chronic health condition.
This study found that participants overcame the challenges related to their caregiving work, emerging as resilient caregivers. Understanding maternal resilience assists nurses to provide the services rural mothers in Australia need to care for their child with a CHC.
Findings from this study provide insight into the experiences of rural maternal caregivers of children with a chronic health condition and identify the strategies they adopt to overcome caregiver challenges. Understanding these strategies allows nurses to improve care and support for rural mothers using a strength-based approach to build maternal resilience.
本研究旨在了解农村母亲照顾慢性病患儿的生活体验，并了解她们对支持、服务和资源的看法，这些支持、服务和资源是她们有效管理护理所必需的。
农村地区的母亲照顾者在为孩子获得专科医疗保健方面存在困难，并且可能还会经历地理和社会隔离。了解使这些母亲照顾者能够克服所面临的挑战和逆境的因素，对于帮助护士确定并促进支持和资源的途径至关重要。
本研究采用现象学设计。本研究按照定性研究报告的统一标准（COREQ）进行报告。
2018 年 3 月至 6 月，在澳大利亚新南威尔士州农村地区对 17 名至少有一名患有 2-18 岁慢性病的儿童的母亲照顾者进行了半结构化访谈。使用主题分析来开发主题框架。本文报告了这项研究中确定的一个主要主题，即母亲的韧性。
参与者通过建立有意义的社会联系、培养网络、培养解决问题的技能、增强自我效能感以及通过希望和乐观主义找到目标感，表现出了母亲的韧性。这些策略使护士深入了解一些农村妇女如何克服与照顾患有慢性病的孩子相关的逆境。
本研究发现，参与者克服了与他们的护理工作相关的挑战，成为有韧性的护理人员。了解母亲的韧性有助于护士为澳大利亚农村母亲提供照顾患有慢性疾病儿童所需的服务。
本研究结果深入了解了农村慢性病患儿母亲照顾者的经历，并确定了她们为克服照顾者挑战而采用的策略。了解这些策略可以使护士以基于优势的方法来增强母亲的韧性，从而改善对农村母亲的护理和支持。
