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艺术家促进身患绝症的个体参与艺术活动:文献的系统综合评价。

Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature.

机构信息

Institute of Nursing and Health Sciences Research, Ulster University, Northern Ireland, UK.

Center for Arts in Medicine, College of the Arts, University of Florida, Gainesville, FL, USA.

出版信息

Palliat Med. 2021 Dec;35(10):1815-1831. doi: 10.1177/02692163211045895. Epub 2021 Nov 16.

Abstract

BACKGROUND

Living with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests that arts engagement facilitated by artists promotes well-being. However, no synthesis of the literature exists to describe arts engagement delivered by artists with individuals receiving palliative care.

AIM

To systematically review and synthesize evidence to identify outcomes and key knowledge gaps to inform future research and practice.

DESIGN

A systematic integrative literature review was conducted using a pre-defined search strategy and reported using PRISMA guidelines. Analysis was conducted iteratively and synthesis achieved using constant comparison to generate themes.

DATA SOURCES

PubMed/MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, and Embase were searched for studies published between database inception and August 2020. Search terms included variations on arts/artists; patients/service users; and palliative or end-of-life care. Eligibility criteria was applied and study quality assessed.

RESULTS

Seven reviewed studies explored literary, performing, and visual arts engagement in hospitals, hospice and community settings in England, the United States, France, and Canada. Study designs, interventions and findings were discussed. Themes identified across studies associated arts engagement with (1) a sense of well-being, (2) a newly discovered, or re-framed, sense of self, (3) connection with others, and (4) challenges associated with practice.

CONCLUSION

Recommendations for future research were offered in order to maximize benefits, minimize risks and address complexity of artists' engagement in palliative care including: (1) consistency in methods and reporting; (2) inclusion of wider perspectives; and (3) key considerations for adapting the arts by health condition and art form.

摘要

背景

患有危及生命的疾病会极大地影响生活质量。越来越多的证据表明,艺术家提供的艺术参与活动可以促进幸福感。然而,目前尚无文献综述描述艺术家为接受姑息治疗的个体提供的艺术参与情况。

目的

系统地回顾和综合证据,以确定结果和主要知识空白,为未来的研究和实践提供信息。

设计

使用预定义的搜索策略进行系统的综合文献回顾,并按照 PRISMA 指南进行报告。分析是迭代进行的,使用恒定性比较来生成主题,从而实现综合。

数据来源

在数据库建立之初至 2020 年 8 月,在 PubMed/MEDLINE、CINAHL、PsycINFO、Scopus、Web of Science 和 Embase 上搜索发表的研究,检索词包括艺术/艺术家、患者/服务使用者和姑息治疗或临终关怀的变体。应用了入选标准并评估了研究质量。

结果

7 项综述研究探讨了在英国、美国、法国和加拿大的医院、临终关怀和社区环境中文学、表演和视觉艺术的参与情况。讨论了研究设计、干预措施和发现。跨研究确定的主题与(1)幸福感、(2)新发现或重新构建的自我意识、(3)与他人的联系以及(4)与实践相关的挑战有关。

结论

为了最大限度地提高效益、最小化风险并解决姑息治疗中艺术家参与的复杂性,提出了未来研究的建议,包括:(1)方法和报告的一致性;(2)纳入更广泛的观点;以及(3)根据健康状况和艺术形式调整艺术的关键考虑因素。

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