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“嗯——这些在肝脏中大量存在的是什么类型的细胞?”癌症患者在常规医院会诊中对生存问题的表露。

"Eh - What type of cells are these - flourishing in the liver?" Cancer patients' disclosure of existential concerns in routine hospital consultations.

作者信息

Larsen Berit Hofset, Lundeby Tonje, Gerwing Jennifer, Gulbrandsen Pål, Førde Reidun

机构信息

Department of Oncology, Oslo University Hospital, Oslo, Norway; Centre for Medical Ethics, University of Oslo, Oslo, Norway.

Department of Oncology, Oslo University Hospital, Oslo, Norway.

出版信息

Patient Educ Couns. 2022 Jul;105(7):2019-2026. doi: 10.1016/j.pec.2021.11.010. Epub 2021 Nov 23.

Abstract

OBJECTIVE

Advanced cancer poses a threat to all aspects of being, potentially causing existential suffering. We explore what kind of existential concerns patients with advanced cancer disclose during a routine hospital consultation, and how they communicate such concerns.

METHODS

We analyzed thirteen video-recorded hospital consultations involving adult patients with advanced cancer. The study has a qualitative and exploratory design, using procedures from microanalysis of face-to-face-dialogue.

RESULTS

Nearly all patients disclosed how the illness experience included losses and threats of loss that are strongly associated with existential suffering, displaying uncertainty about future and insecurity about self and coping. Patients usually disclosed existential concerns uninvited, but they did so indirectly and subtly, typically hiding concerns in biomedical terms or conveying them with hesitation and very little emotion.

CONCLUSIONS

Patients may have existential concerns they want to address, but they may be uncertain whether these are issues they can discuss with the physician.

PRACTICE IMPLICATIONS

Health professionals should be attentive to underlying existential messages embedded in the patient's questions and concerns. Acknowledging these existential concerns provides an opportunity to briefly explore the patient's needs and may direct how the physician tailors information and support to promote coping, autonomy, and existential health.

摘要

目的

晚期癌症对患者的各个方面都构成威胁,可能导致生存性痛苦。我们探讨晚期癌症患者在常规医院会诊期间会透露哪些生存性担忧,以及他们如何表达这些担忧。

方法

我们分析了13段涉及成年晚期癌症患者的医院会诊视频记录。该研究采用定性和探索性设计,运用面对面对话微观分析的程序。

结果

几乎所有患者都透露,疾病经历包括与生存性痛苦密切相关的丧失和丧失威胁,表现出对未来的不确定以及对自我和应对能力的不安全感。患者通常会主动透露生存性担忧,但方式间接且微妙,通常用生物医学术语掩盖担忧,或犹豫不决且几乎不带情感地表达。

结论

患者可能有想要表达的生存性担忧,但不确定这些是否是可以与医生讨论的问题。

实践意义

卫生专业人员应留意患者问题和担忧中隐含的潜在生存性信息。承认这些生存性担忧为简要探索患者需求提供了机会,并可能指导医生如何调整信息和支持方式以促进应对、自主性和生存健康。

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