勾画专业医疗保健子系统中残疾儿童的治疗路线图。
Outlining the therapeutic itineraries of children with disabilities in the professional health care subsystem.
作者信息
Farias Andreia Chaves, Maia Evanira Rodrigues, Costa Milena Silva, Moreira Maria Rosilene Cândido, Oliveira Joseph Dimas de, Pinto Antonio Germane Alves
机构信息
Universidade Regional do Cariri. Crato, Ceará, Brazil.
Universidade Federal do Cariri. Barbalha, Ceará, Brazil.
出版信息
Rev Bras Enferm. 2021 Nov 29;75(3):e20210169. doi: 10.1590/0034-7167-2021-0169. eCollection 2021.
OBJECTIVES
to identify the outlining of therapeutic itineraries of families of children with disabilities in the professional health care subsystem.
METHODS
qualitative research carried out in two specialized services in the state of Ceará, with 41 family members interviewed using the life path technique and reports submitted to descending hierarchical classification and similitude analysis, with the help of the IRaMuTeQ software and the theoretical framework of health care systems.
RESULTS
the classes described the families' itineraries in five paths, related to faith, support structures, medical behaviors, professionals, and health services. The professional subsystem stood out as deficient in outlining the therapeutic itinerary for access to health care for children with disabilities, without promoting integration between services in the Care Network.
FINAL CONSIDERATIONS
the families' therapeutic itineraries showed homogeneous discourse with themes related to the care of professionals and spiritual aspects.
目的
确定残疾儿童家庭在专业医疗保健子系统中的治疗行程规划。
方法
在塞阿拉州的两个专业服务机构中进行了定性研究，使用生命历程技术对 41 名家庭成员进行了访谈，并根据降序层次分类和相似性分析提交了报告，使用了 IRaMuTeQ 软件和医疗保健系统的理论框架。
结果
所描述的类别包括家庭在五个路径中的行程，这些路径与信仰、支持结构、医疗行为、专业人员和卫生服务有关。专业子系统在为残疾儿童获得医疗保健规划治疗行程方面存在不足，没有促进关怀网络中各服务之间的整合。
最终考虑
家庭的治疗行程表现出与专业人员照顾和精神方面相关的主题的同质话语。
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