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生命终末期的真相揭示:阿联酋内科住院医师的定性研究。

Truth Disclosure at the End of Life: A Qualitative Study of Internal Medicine Residents in the United Arab Emirates.

机构信息

Department of Medicine, 37532Sheikh Khalifa Medical City, Abu Dhabi, United Arab Emirates.

出版信息

Am J Hosp Palliat Care. 2022 Oct;39(10):1182-1187. doi: 10.1177/10499091211063820. Epub 2021 Dec 28.

Abstract

BACKGROUND

Respect for patient autonomy has become the guiding biomedical ethical tenet in the West; yet, moral values are contextual and culturally relevant. In the collectivist society of the Middle East, families and physicians have historically believed that concealing truth about a terminal illness is more ethical and compassionate. Recent studies reveal a trend toward truth disclosure.

OBJECTIVE

To gain insight into resident experiences with, and barriers to, truth disclosure in terminally ill patients in the United Arab Emirates (UAE).

METHODS

Focus group interviews were conducted with first through fourth year internal medicine residents and recent graduates at two large academic medical centers in the UAE. Qualitative thematic content analysis was used to identify themes related to communication and truth telling in end-of-life care.

RESULTS

Residents revealed that non-disclosure of medical information in serious illness is a common practice in UAE hospitals. Barriers to truth telling include family objection, deficits in medical training, and inconsistently implemented institutional guidelines.

CONCLUSION

Educational and policy interventions are needed to improve physician-patient communication, decrease patient-family-physician tension, and alleviate trainee moral distress.

摘要

背景

尊重患者自主权已成为西方生物医学伦理的指导原则;然而,道德价值观是具有背景和文化相关性的。在中东的集体主义社会中,家庭和医生历来认为,对绝症患者隐瞒真相更合乎道德且更有人情味。最近的研究显示出一种趋向,即倾向于披露真相。

目的

深入了解阿联酋住院医师在终末期患者中披露真相的经历和障碍。

方法

在阿联酋的两家大型学术医疗中心,对一至四年级的内科住院医师和最近的毕业生进行了焦点小组访谈。采用定性主题内容分析法,确定与临终关怀中沟通和告知真相相关的主题。

结果

住院医师透露,在严重疾病中不披露医疗信息是阿联酋医院的常见做法。告知真相的障碍包括家属反对、医学培训不足以及机构指南执行不一致。

结论

需要教育和政策干预来改善医患沟通,减少患者-家庭-医生之间的紧张关系,并减轻学员的道德困境。

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