Staniszewska Sophie, Hickey Gary, Coutts Pippa, Thurman Ben, Coldham Tina
Warwick Research in Nursing, Warwick Medical School, University of Warwick, Coventry, CV4 7AL, UK.
School of Healthcare Enterprise & Innovation, Faculty of Medicine, University of Southampton, Southampton, UK.
Res Involv Engagem. 2022 Feb 5;8(1):4. doi: 10.1186/s40900-022-00340-2.
Carnegie UK (CUK) and National Institute for Health Research (NIHR) INVOLVE held a meeting on the co-production of research, how we work together on equal terms. We brought together public contributors and individuals from organisations focused on research. We wanted to discuss how co-production could work in research, how it could be seen as business as usual, and to think through the barriers that stop us from working together, as well as the things that can help us move forward. While we agreed that the idea of working together is important, we recognised there are still many challenges to co-production being seen as a normal activity in research and the development of a 'business case' to persuade others is still needed. We also considered the wider civic roles that Universities are adopting as important in helping co-production become normal practice. Discussion focused on issues such as power and how it works in research. We recognised that we also need to create the right conditions for co-production, changing research culture so it becomes kinder, with a focus on the development of relationships. We also recognised the need for enough time for honest, high quality conversations between patients, public contributors and researchers that take account of how power works in research. Co-production was seen as a societal 'good,' helping us live well by undertaking research together that benefits the health of the public. We also identified a range of ways we could move co-production forward, recognising we are on a journey and that current societal changes brought about by Covid-19 may result in us being more radical in how we rethink the ways we want to work in research.
英国卡内基基金会(CUK)和英国国家卫生研究院(NIHR)公众参与办公室召开了一次关于研究合作生产的会议,探讨我们如何在平等的基础上共同开展工作。我们召集了公众参与者以及来自专注于研究的组织的人员。我们希望讨论合作生产在研究中如何发挥作用,如何将其视为常规工作,思考阻碍我们共同合作的障碍,以及有助于我们向前推进的因素。虽然我们一致认为合作的理念很重要,但我们也认识到,要使合作生产在研究中被视为一种常态活动仍面临诸多挑战,仍需要制定一个“商业案例”来说服他人。我们还认为,大学所承担的更广泛的公民角色对于帮助合作生产成为常规做法至关重要。讨论聚焦于权力等问题以及它在研究中的运作方式。我们认识到,我们还需要为合作生产创造合适的条件,改变研究文化,使其变得更加友善,注重关系的发展。我们也认识到,患者、公众参与者和研究人员之间需要有足够的时间进行坦诚、高质量的对话,同时要考虑到权力在研究中的运作方式。合作生产被视为一种社会“福祉”,通过共同开展有益于公众健康的研究,帮助我们更好地生活。我们还确定了一系列可以推动合作生产向前发展的方法,认识到我们仍在探索的道路上,而且新冠疫情带来的当前社会变革可能会促使我们更加激进地重新思考我们在研究中的工作方式。