从乳腺癌患者的角度探讨获得医疗服务的问题：一项定性研究。
Exploring access to care from the perspective of patients with breast cancer: A qualitative study.
机构信息
TxCORE (Texas Center for Health Outcomes Research and Education), The University of Texas at Austin College of Pharmacy, Austin, Texas, USA.
Research Triangle Institute, Research Triangle Park, North Carolina, USA.
出版信息
Cancer Med. 2022 Jun;11(12):2455-2466. doi: 10.1002/cam4.4624. Epub 2022 Mar 10.
OBJECTIVES
Patients face a myriad of personal and system-based challenges in accessing breast cancer care, but less is known about access as expressed and experienced by patients themselves. The objective of this qualitative study was to further explore the breadth of issues related to access from the perspective of patients with breast cancer across their care journey.
METHODS
Twelve women participated in 1-h semi-structured interviews and 48 women participated in 2-h focus groups at six oncology practices in 2018. Grounded theory was used to analyze the data.
RESULTS
Six primary themes emerged concerning access to care: information, psychosocial support, health insurance, financial resources, timeliness, and emotions.
CONCLUSIONS
This study identified six core dimensions of access to care. Access encompassed not only gaining entrée to care services-in the traditional sense of access-but also the continuing support needed to effectively use those services throughout the cancer care journey. Future strategies aimed at improving access to breast cancer care should attend to these ongoing patient-centric and system-based issues which are mostly amenable to change.
目的
患者在获得乳腺癌护理方面面临着众多个人和系统方面的挑战，但患者自身对获得护理的表达和体验知之甚少。本 qualitative 研究的目的是进一步从乳腺癌患者在整个护理过程中的角度探讨与获得护理相关的广泛问题。
方法
2018 年，在六个肿瘤学诊所中，12 名女性参加了 1 小时的半结构化访谈，48 名女性参加了 2 小时的焦点小组。使用扎根理论对数据进行分析。
结果
出现了六个与获得护理相关的主要主题：信息、社会心理支持、健康保险、经济资源、及时性和情绪。
结论
本研究确定了获得护理的六个核心维度。获得不仅包括传统意义上获得护理服务的途径，还包括在整个癌症护理过程中有效使用这些服务所需的持续支持。未来旨在改善乳腺癌护理获得的策略应关注这些以患者为中心和基于系统的持续问题，这些问题大多是可以改变的。
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