Akdeniz University, Institute of Social Sciences, Department of Women's Studies and Gender, Antalya, Turkey.
Akdeniz University, Faculty of Nursing, Department of Obstetrics & Gynaecological Nursing, Antalya, Turkey.
Res Dev Disabil. 2022 May;124:104217. doi: 10.1016/j.ridd.2022.104217. Epub 2022 Mar 11.
This study aims to examine the impact of a Down syndrome diagnosis on mothers' experiences in Turkey and to understand how they construct their mothering in the context of personal growth despite the emotional and social difficulties they encounter. Grounded theory was used in this study. Data were taken from in-depth interviews with 15 mothers, and analysed using a systematic and hierarchical approach based on a constant comparative method. There also emerged three primary categories: reconstruction of mothering; factors affecting the process; and response to the changing life. The mothers explained that they experienced personal growth, such as feeling stronger, improving their ability to communicate, and becoming "closer to God". More cultural research is needed to explore the unique nature of the experiences and personal growth processes of mothers of children with Down syndrome.
本研究旨在探讨唐氏综合征诊断对土耳其母亲体验的影响,并理解她们如何在个人成长的背景下构建育儿方式,尽管她们面临情感和社会困难。本研究采用扎根理论。数据来自对 15 位母亲的深入访谈,并使用基于恒定比较法的系统和分层方法进行分析。还出现了三个主要类别:育儿方式的重构;影响过程的因素;以及对生活变化的反应。母亲们解释说,她们经历了个人成长,例如感觉更强大、提高了沟通能力,并变得“更接近上帝”。需要进行更多的文化研究,以探索唐氏综合征患儿母亲的独特体验和个人成长过程。