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Caregiving, ethnicity and gender in Māori and non-Māori New Zealanders of advanced age: Findings from LiLACS NZ Kaiāwhina (Love and Support) study.新西兰高龄毛利人和非毛利人的照护、种族与性别:来自新西兰老年护理纵向老龄化研究(LiLACS NZ Kaiāwhina,爱与支持)的发现
Australas J Ageing. 2020 Mar;39(1):e1-e8. doi: 10.1111/ajag.12671. Epub 2019 May 16.
2
Understanding the needs of caregivers of persons with dementia: a scoping review.了解痴呆症患者护理者的需求:范围综述。
Int Psychogeriatr. 2020 Jan;32(1):35-52. doi: 10.1017/S1041610219000243.
3
My husband is not ill; he has memory loss - caregivers´ perspectives on health care services for persons with dementia.我的丈夫没有生病;他只是记忆力减退——照顾者对痴呆症患者医疗服务的看法。
BMC Geriatr. 2019 Mar 6;19(1):75. doi: 10.1186/s12877-019-1090-6.
4
Association of Informal Caregiver Distress with Health Outcomes of Community-Dwelling Dementia Care Recipients: A Systematic Review.照料者负担与社区居住的痴呆症照料接受者健康结局的关系:系统评价。
J Am Geriatr Soc. 2019 Mar;67(3):609-617. doi: 10.1111/jgs.15690. Epub 2018 Dec 10.
5
Distress in informal carers of the elderly in New Zealand.新西兰老年非正式护理人员的困扰。
N Z Med J. 2018 Nov 9;131(1485):60-66.
6
Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries.获取和使用正式痴呆症护理的障碍和促进因素:在 8 个欧洲国家进行的一项焦点小组研究,涉及痴呆症患者、非正式照顾者以及卫生和社会保健专业人员的发现。
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7
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How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies.如何探究阿尔茨海默病或相关疾病认知障碍患者非正式照护者的需求?一项关于定量和定性研究的系统综述
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使用阿尔茨海默病组织提供的痴呆症社区支持服务的障碍和促进因素:接受服务的非正式照护者的看法。

Barriers and facilitators of using dementia community support services provided by an Alzheimers organisation: Perceptions of informal caregivers receiving services.

机构信息

Department of Marketing, University of Otago, Dunedin, New Zealand.

出版信息

Health Soc Care Community. 2022 Nov;30(6):2353-2361. doi: 10.1111/hsc.13796. Epub 2022 Mar 18.

DOI:10.1111/hsc.13796
PMID:35302267
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10078713/
Abstract

Known barriers prevent informal caregivers of a person with dementia using community services; however, there is a dearth of knowledge on how organisations can overcome these barriers. This study examined caregivers' perceptions of the barriers and facilitators of service use with regards to their membership to one Alzheimers organisation and their recommendations for improvements. In-depth interviews were conducted with 19 informal caregivers. Thematic analysis revealed personal and organisational barriers to service use, and associated recommendations. Six recommendations were made for dementia service organisations: (a) be proactive and arrange regular scheduled meetings with clients; (b) utilise consistent, trusting, empathic support personnel who can build strong relationships with clients; (c) provide support groups; (d) tailor support; (e) ensure expert knowledge and numerous channels of information delivery to clients, the general public and health professionals and (f) actively promote the organisation and services offered. This study provides novel insights into how a community organisation can overcome client barriers to service use. In addition, the study reveals caregivers perceived value of an Alzheimers organisation, argued to be an essential service, but until now clients' perceptions of the value received have not been explored.

摘要

已知的障碍阻止了痴呆症患者的非专业照护者使用社区服务;然而,对于组织如何克服这些障碍知之甚少。本研究考察了照护者对服务使用的障碍和促进因素的看法,这些看法涉及他们是否属于一个阿尔茨海默病组织,以及他们对改进的建议。对 19 名非专业照护者进行了深入访谈。主题分析揭示了服务使用的个人和组织障碍,以及相关建议。为痴呆症服务组织提出了六项建议:(a)主动并定期与客户安排定期会议;(b)利用一致、值得信赖、富有同理心的支持人员,他们可以与客户建立牢固的关系;(c)提供支持小组;(d)量身定制支持;(e)确保向客户、公众和卫生专业人员提供专业知识和多种信息传递渠道;(f)积极宣传组织和提供的服务。本研究提供了新颖的见解,了解社区组织如何克服客户对服务使用的障碍。此外,该研究揭示了照护者对阿尔茨海默病组织价值的看法,认为这是一项必要的服务,但到目前为止,还没有探讨客户对所获得价值的看法。