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使用阿尔茨海默病组织提供的痴呆症社区支持服务的障碍和促进因素:接受服务的非正式照护者的看法。

Barriers and facilitators of using dementia community support services provided by an Alzheimers organisation: Perceptions of informal caregivers receiving services.

机构信息

Department of Marketing, University of Otago, Dunedin, New Zealand.

出版信息

Health Soc Care Community. 2022 Nov;30(6):2353-2361. doi: 10.1111/hsc.13796. Epub 2022 Mar 18.

Abstract

Known barriers prevent informal caregivers of a person with dementia using community services; however, there is a dearth of knowledge on how organisations can overcome these barriers. This study examined caregivers' perceptions of the barriers and facilitators of service use with regards to their membership to one Alzheimers organisation and their recommendations for improvements. In-depth interviews were conducted with 19 informal caregivers. Thematic analysis revealed personal and organisational barriers to service use, and associated recommendations. Six recommendations were made for dementia service organisations: (a) be proactive and arrange regular scheduled meetings with clients; (b) utilise consistent, trusting, empathic support personnel who can build strong relationships with clients; (c) provide support groups; (d) tailor support; (e) ensure expert knowledge and numerous channels of information delivery to clients, the general public and health professionals and (f) actively promote the organisation and services offered. This study provides novel insights into how a community organisation can overcome client barriers to service use. In addition, the study reveals caregivers perceived value of an Alzheimers organisation, argued to be an essential service, but until now clients' perceptions of the value received have not been explored.

摘要

已知的障碍阻止了痴呆症患者的非专业照护者使用社区服务;然而,对于组织如何克服这些障碍知之甚少。本研究考察了照护者对服务使用的障碍和促进因素的看法,这些看法涉及他们是否属于一个阿尔茨海默病组织,以及他们对改进的建议。对 19 名非专业照护者进行了深入访谈。主题分析揭示了服务使用的个人和组织障碍,以及相关建议。为痴呆症服务组织提出了六项建议:(a)主动并定期与客户安排定期会议;(b)利用一致、值得信赖、富有同理心的支持人员,他们可以与客户建立牢固的关系;(c)提供支持小组;(d)量身定制支持;(e)确保向客户、公众和卫生专业人员提供专业知识和多种信息传递渠道;(f)积极宣传组织和提供的服务。本研究提供了新颖的见解,了解社区组织如何克服客户对服务使用的障碍。此外,该研究揭示了照护者对阿尔茨海默病组织价值的看法,认为这是一项必要的服务,但到目前为止,还没有探讨客户对所获得价值的看法。

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