School of Psychology and Wellbeing, University of Southern Queensland, Ipswich, QLD, Australia.
Centre for Health Research, University of Southern Queensland, Springfield, QLD, Australia.
J Cancer Surviv. 2023 Apr;17(2):441-448. doi: 10.1007/s11764-022-01204-0. Epub 2022 Mar 25.
The purpose of the study was to investigate the amount and type of survivorship care information received by cancer survivors living in rural Australia and whether this varies according to demographic factors or cancer type.
Self-reported receipt of a survivorship care plan (SCP) and information on various aspects of survivorship care (e.g., managing side effects, healthy lifestyles, psychosocial advice and monitoring for recurrence) were collected from 215 cancer survivors who had returned home to a rural area in Queensland Australia after receiving cancer treatment in a major city within the previous 5 years (72% in the previous 12 months). Logistic regression was used to assess for differences across demographic factors and cancer type.
Only 35% of participants reported receiving a SCP and proportions of those reporting the receipt of specific information varied from 74% for information on short-term side effects to less than 30% for information on finances, chemoprevention and monitoring for signs of recurrence. No significant differences were found in the receipt of survivorship care information across demographic factors or cancer type.
Findings suggest that cancer survivors living in rural areas are not consistently provided with adequate survivorship care information, particularly that pertaining to long-term health and recovery.
Without improved systems for delivering survivorship care information to patients returning home to rural communities after treatment, these cancer survivors risk missing out on necessary information and advice to maintain their health, wellbeing and long-term recovery.
本研究旨在调查居住在澳大利亚农村的癌症幸存者所获得的生存护理信息的数量和类型，以及这些信息是否因人口统计学因素或癌症类型而有所不同。
本研究从 215 名癌症幸存者中收集了有关生存护理计划（SCP）和生存护理各个方面的信息（例如，管理副作用、健康生活方式、心理社会建议和复发监测），这些幸存者在过去 5 年内曾在澳大利亚昆士兰州的一个主要城市接受癌症治疗，之后返回家乡农村地区（72%在过去 12 个月内）。使用逻辑回归来评估人口统计学因素和癌症类型之间的差异。
只有 35%的参与者报告收到了 SCP，而报告收到特定信息的比例从短期副作用信息的 74%到财务、化学预防和复发迹象监测信息的不到 30%不等。在人口统计学因素或癌症类型方面，生存护理信息的接收情况没有显著差异。
研究结果表明，居住在农村地区的癌症幸存者并未始终获得足够的生存护理信息，特别是有关长期健康和康复的信息。
如果没有改善的系统来向在治疗后返回家乡农村社区的患者提供生存护理信息，这些癌症幸存者可能会错过维持其健康、幸福和长期康复所需的信息和建议。
