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临床医生对如何与慢性阻塞性肺疾病患者更早地进行姑息治疗和临终关怀讨论的观点:一项定性研究

Clinician Perspectives on How to Hold Earlier Discussions About Palliative and End-of-Life Care With Chronic Obstructive Pulmonary Disease Patients: A Qualitative Study.

作者信息

Tavares Nuno, Jarrett Nikki, Wilkinson Tom, Hunt Katherine

出版信息

J Hosp Palliat Nurs. 2022 Jun 1;24(3):E101-E107. doi: 10.1097/NJH.0000000000000858. Epub 2022 Mar 25.

Abstract

Chronic obstructive pulmonary disease is associated with progressive symptoms and increased treatment burden, especially at the end of life. However, most patients do not receive palliative care until late in their lives or discuss their end-of-life preferences with clinicians. This study explored clinicians' perspectives on the timing and nature of palliative care discussions. Qualitative interviews were conducted with 7 physicians and 7 nurses working in primary and secondary care settings. Data were analyzed using a thematic analysis. Participants advocated for early, gradual, and informed palliative and future care discussions, because these discussions were thought to be less traumatic and better accepted by patients. Despite this, patient- and clinician-related barriers severely affected clinicians' ability to start discussions at earlier stages. Participants felt many patients were not ready for these discussions and feared damaging hope if the subject was broached. Therefore, clinicians delayed discussions until patients approached the end of life. Stand-alone conversations about and near the end of life were described as current practice; however, clinicians believed these discussions reduced patients' hope and were potentially upsetting. Instead, individualized early, regular, and gradual discussions about immediate and long-term care plans were thought to be less negative and be better accepted.

摘要

慢性阻塞性肺疾病与症状进展及治疗负担增加相关,尤其是在生命末期。然而,大多数患者直到生命晚期才接受姑息治疗,或者与临床医生讨论他们的临终偏好。本研究探讨了临床医生对姑息治疗讨论时机和性质的看法。对在初级和二级医疗环境中工作的7名医生和7名护士进行了定性访谈。采用主题分析法对数据进行了分析。参与者主张尽早、逐步且在充分知情的情况下进行姑息治疗和未来护理讨论,因为这些讨论被认为创伤性较小,更容易被患者接受。尽管如此,与患者和临床医生相关的障碍严重影响了临床医生在早期阶段展开讨论的能力。参与者认为许多患者还没有准备好进行这些讨论,并且担心如果提及这个话题会破坏患者的希望。因此,临床医生会推迟讨论,直到患者接近生命末期。关于生命末期及临近生命末期的单独谈话被描述为当前的做法;然而,临床医生认为这些讨论会降低患者的希望,并且可能令人不安。相反,关于即时和长期护理计划的个性化、早期、定期且逐步的讨论被认为负面影响较小,更容易被接受。

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