University of Wisconsin-Milwaukee Joseph J. Zilber School of Public Health, 1240 N 10th St, Milwaukee, WI 53205, USA.
University of Wisconsin-Milwaukee, College of Nursing, 1921 E. Hartford Avenue Milwaukee, WI 53211, USA.
Soc Sci Med. 2022 May;301:114934. doi: 10.1016/j.socscimed.2022.114934. Epub 2022 Mar 18.
In this critical ethnographic study, we examined women's end of life experiences in Malawi, one of the few countries in the world with a national palliative care policy. Specifically, we explored how women's and their caregivers' experiences were shaped by family and community care, and material needs. Interviews and observations with female clients of a non-governmental organization in rural Central Malawi, and with their caregivers, revealed that community-level support was both precarious and critical. We found three main themes: (1) I stay with them well, (2) we eat together, and (3) everyone is for themselves. The analysis illustrates the centrality of community care, social in/exclusion, and availability of stable food, shelter, medical, and caregiving resources on health and wellbeing at end of life. We provide recommendations to strengthen community care opportunities and women's resource bases.
在这项关键的人种学研究中,我们考察了马拉维女性的临终体验,马拉维是世界上少数几个拥有国家姑息治疗政策的国家之一。具体而言,我们探讨了女性及其照顾者的体验如何受到家庭和社区护理以及物质需求的影响。在马拉维中部农村的一个非政府组织中,对女性客户及其照顾者进行了访谈和观察,结果显示,社区层面的支持既不稳定又至关重要。我们发现了三个主要主题:(1)我和他们一起好好地呆着,(2)我们一起吃饭,(3)人人为己。分析说明了社区护理、社会排斥/包容以及稳定的食物、住所、医疗和护理资源的可获得性对临终时的健康和幸福感的核心作用。我们提出了加强社区护理机会和女性资源基础的建议。