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产后抑郁症心理教育干预的女性偏好与设计建议:用户参与研究

Women's Preferences and Design Recommendations for a Postpartum Depression Psychoeducation Intervention: User Involvement Study.

作者信息

Siddhpuria Shailee, Breau Genevieve, Lackie Madison E, Lavery Brynn M, Ryan Deirdre, Shulman Barbara, Kennedy Andrea L, Brotto Lori A

机构信息

Department of Undergraduate Medicine, Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.

School of Human Sciences, University of Greenwich, London, United Kingdom.

出版信息

JMIR Form Res. 2022 Jun 23;6(6):e33411. doi: 10.2196/33411.

DOI:10.2196/33411
PMID:35737435
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9264129/
Abstract

BACKGROUND

Postpartum depression (PPD) is one of the leading causes of maternal morbidity, affecting up to 18% of Canadian new mothers. Yet, PPD often remains untreated due to numerous barriers in access to care, including location and cost. Development of eHealth interventions in collaboration with patient partners offers an exciting opportunity to fill this care gap and provide effective and affordable care to new parents across British Columbia.

OBJECTIVE

Our aim was to determine the content and design preferences of women previously diagnosed with PPD to inform changes to the development of a web-enabled intervention for education and management of PPD.

METHODS

Webpage prototypes were created to mimic the web-enabled resource using findings from completed focus group research that assessed what women want in a web-enabled support resource for PPD. A convenience sample of women aged >18 years and previously diagnosed with PPD was recruited. Feedback was collected on the content and design of the prototypes via semistructured interviews and online surveys. Qualitative, inductive analytic, and quantitative methods were used.

RESULTS

A total of 9 women (mean age 37.2 years, SD 4.8 years) completed the interview and a majority of the survey. The following 6 themes were identified: (1) inefficacy of text-heavy layouts, (2) highlighting key information, (3) clarity/understandability of the language, (4) finding support groups, (5) validation and immediate help for feelings of isolation, and (6) helpfulness and accessibility of the resource. Each theme identified elements of content or design that were either effective or may be improved upon. Most women (8/9, 89%) favored content relating to foundational knowledge of PPD, such as symptoms and management options. The layout, language, and content were found to be generally easy to understand, clear, trustworthy, and helpful.

CONCLUSIONS

Six key areas were identified by women previously diagnosed with PPD, as requiring focus in a web-enabled psychoeducation program. Consistent with past research, this study also found that support and enthusiasm for web-enabled programs support PPD management as an adjunct to other evidence-based treatments.

摘要

背景

产后抑郁症(PPD)是孕产妇发病的主要原因之一,影响着多达18%的加拿大新妈妈。然而,由于获得护理存在诸多障碍,包括地理位置和费用等因素,PPD往往得不到治疗。与患者合作伙伴合作开发电子健康干预措施,为填补这一护理缺口并为不列颠哥伦比亚省的新父母提供有效且经济实惠的护理提供了一个令人兴奋的机会。

目的

我们的目标是确定先前被诊断为PPD的女性的内容和设计偏好,以便为开发用于PPD教育和管理的网络干预措施提供改进依据。

方法

利用已完成的焦点小组研究结果创建网页原型,以模拟该网络资源,该研究评估了女性在PPD网络支持资源中想要的内容。招募了年龄大于18岁且先前被诊断为PPD的女性作为便利样本。通过半结构化访谈和在线调查收集对原型内容和设计的反馈。采用了定性、归纳分析和定量方法。

结果

共有9名女性(平均年龄37.2岁,标准差4.8岁)完成了访谈和大部分调查。确定了以下6个主题:(1)文字过多的布局效果不佳,(2)突出关键信息,(3)语言的清晰度/易懂性,(4)寻找支持小组,(5)对孤独感的确认和即时帮助,以及(6)资源的实用性和可及性。每个主题都确定了内容或设计中有效或可能需要改进的元素。大多数女性(8/9,89%)喜欢与PPD基础知识相关的内容,如症状和管理选项。布局、语言和内容总体上被认为易于理解、清晰、可信且有帮助。

结论

先前被诊断为PPD的女性确定了六个关键领域,需要在网络心理教育项目中重点关注。与过去的研究一致,本研究还发现,对网络项目的支持和热情有助于将PPD管理作为其他循证治疗的辅助手段。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/be2b61c2051a/formative_v6i6e33411_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/7e187283d835/formative_v6i6e33411_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/37a3a3fdd279/formative_v6i6e33411_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/a2dc7f3a0665/formative_v6i6e33411_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/be2b61c2051a/formative_v6i6e33411_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/7e187283d835/formative_v6i6e33411_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/37a3a3fdd279/formative_v6i6e33411_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/a2dc7f3a0665/formative_v6i6e33411_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/910b/9264129/be2b61c2051a/formative_v6i6e33411_fig4.jpg