White Carole L, Masoud Sara S, Glassner Ashlie A, Rhodes Shanae, Mendoza Mayra, Meyer Kylie
Caring for the Caregiver Program, School of Nursing, UT Health San Antonio, San Antonio, TX, USA.
Glenn Biggs Institute for Alzheimer's and Neurodegenerative Diseases, UT Health San Antonio, San Antonio, TX, USA.
J Patient Exp. 2022 Jul 11;9:23743735221112208. doi: 10.1177/23743735221112208. eCollection 2022.
The aim of this study was to describe the impact of the COVID-19 pandemic on dementia care from a multiple stakeholder perspective. We used a multi-method design, with a cross-sectional survey followed by focus groups/interviews. Surveys were completed by people living with dementia (n = 27), family caregivers (n = 161), and health and social care professionals (n = 77). A sub-sample (n = 55) participated in an interview or one of 9 focus groups. Surveys were analyzed with descriptive statistics and focus group/interview data were analyzed using a thematic approach. Participants reported an impact of COVID-19 on dementia care, including less access to care and resources for care. Telehealth and tele-support/education were reported to be effective alternatives to support care. Themes from the qualitative data about dementia care were: (1) planning and providing care, (2) making choices around risk and safety, (3) experiences of loss, and (4) technology and dementia care. The results of this study present opportunities to improve the quality of care through addressing inequities and identifying improved and innovative approaches to address social isolation and virtual care for this vulnerable population.
本研究的目的是从多个利益相关者的角度描述新冠疫情对痴呆症护理的影响。我们采用了多方法设计，先进行横断面调查，随后开展焦点小组讨论/访谈。调查由痴呆症患者（n = 27）、家庭护理人员（n = 161）以及健康和社会护理专业人员（n = 77）完成。一个子样本（n = 55）参与了访谈或9个焦点小组讨论中的一个。调查采用描述性统计进行分析，焦点小组讨论/访谈数据采用主题分析法进行分析。参与者报告了新冠疫情对痴呆症护理的影响，包括获得护理和护理资源的机会减少。远程医疗以及远程支持/教育被报告为支持护理的有效替代方式。定性数据中关于痴呆症护理的主题有：（1）护理的规划与提供，（2）围绕风险和安全做出选择，（3）失落经历，以及（4）技术与痴呆症护理。本研究结果为通过解决不平等问题以及确定改进和创新方法来解决这一弱势群体的社会隔离和虚拟护理问题从而提高护理质量提供了机会。
