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自闭症谱系障碍中的家庭沟通:将家庭照顾者沟通类型学应用于父母照顾者。

Family Communication in Autism Spectrum Disorder: Applying the Family Caregiver Communication Typology to Parent Caregivers.

机构信息

Department of Communication, From University of Delaware.

Department of Communication Studies, From California State University Los Angeles.

出版信息

Health Commun. 2023 Dec;38(13):2945-2955. doi: 10.1080/10410236.2022.2128232. Epub 2022 Oct 3.

Abstract

Parents of children with Autism Spectrum Disorder (ASD) experience greater stress and caregiver burden than parents of children with other disabilities. To cope with the stress of long-term caregiving, they rely on professionals for support and guidance. However, parents continue to report unmet communication and support needs. To inform tailored communication for parents of a child with ASD, this study used the existing Family Caregiver Communication Typology framework which identifies four caregiver communication types (manager, carrier, partner, and lone) and their unique communication and support needs. In-depth, structured interviews were conducted with parents (n = 22) and ASD professionals (n = 28) to explore communication characteristics of ASD parent caregivers. A thematic analysis revealed communication behaviors among four ASD parent caregiver types, further validating the typology. Future research is needed to develop targeted interventions for improving family-centered care based on ASD parent caregiver types.

摘要

自闭症谱系障碍(ASD)儿童的父母比其他残疾儿童的父母经历更大的压力和照顾者负担。为了应对长期护理的压力,他们依靠专业人士的支持和指导。然而,父母们仍然报告沟通和支持需求未得到满足。为了为 ASD 儿童的父母提供量身定制的沟通,本研究使用了现有的家庭照顾者沟通类型学框架,该框架确定了四种照顾者沟通类型(管理者、载体、伙伴和孤独者)及其独特的沟通和支持需求。对父母(n=22)和 ASD 专业人员(n=28)进行了深入的、结构化的访谈,以探索 ASD 家长照顾者的沟通特征。主题分析揭示了四种 ASD 家长照顾者类型的沟通行为,进一步验证了该类型学。需要进一步研究以基于 ASD 家长照顾者类型制定有针对性的干预措施,以改善以家庭为中心的护理。

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