Universidade Federal de São Paulo, Departamento de Ciências do Movimento Humano e Reabilitação, Santos SP, Brazil.
Universidade Federal de São Paulo, Departamento de Neurologia, São Paulo SP, Brazil.
Arq Neuropsiquiatr. 2022 Jul;80(7):712-717. doi: 10.1055/s-0042-1755232. Epub 2022 Sep 29.
Coronavirus 2 severe acute respiratory syndrome (SARS-CoV-2), generically called COVID-2019, classified as a pandemic by the World Health Organization, has made health practices around the world face unique challenges. Since then, physical distancing and measures such as confinement have been adopted by different governments to control human-to-human transmission. This distance affected the treatment of individuals with progressive diseases such as neuromuscular diseases (NMDs).
To identify how patients with NMDs performed the therapeutic routine during social distancing and confinement resulting from the COVID-19 pandemic.
Application of a questionnaire prepared in the Google forms application, whose link for access and participation was sent by email or WhatssApp for family members and/or individuals with DNMs to respond. The questionnaire consisted of multiple-choice questions, divided into the following sections: personal data, treatments performed before and during the pandemic, activities performed during confinement, and characterization of motor function in activities of daily living comprising the period between September and October 2020.
We observed a significant reduction in medical appointments for patients with NMDs. On the other hand, the results showed that most patients underwent motor and/or respiratory physiotherapy in person or by telemonitoring. The study participants reported spending more time playing indoors, and all pointed out motor changes during social distancing.
There were changes in the therapeutic routine of patients with NMDs during the period of social distancing due to COVID-19.
冠状病毒 2 严重急性呼吸系统综合征（SARS-CoV-2），通常称为 COVID-19，被世界卫生组织归类为大流行，使世界各地的卫生实践面临独特的挑战。从那时起，不同国家的政府采取了保持社交距离和禁闭等措施来控制人与人之间的传播。这种距离影响了包括神经肌肉疾病（NMD）在内的进行性疾病患者的治疗。
确定在 COVID-19 大流行导致的社交距离和禁闭期间，NMD 患者如何进行治疗常规。
应用在 Google 表单应用程序中准备的问卷，通过电子邮件或 Whatsapp 将访问和参与的链接发送给家庭成员和/或 NMD 患者进行回复。问卷由多项选择题组成，分为以下几个部分：个人数据、大流行前和期间进行的治疗、禁闭期间进行的活动以及在 2020 年 9 月至 10 月期间日常生活活动中的运动功能特征。
我们观察到 NMD 患者的医疗预约显著减少。另一方面，结果表明，大多数患者接受了个人或远程监测的运动和/或呼吸物理治疗。研究参与者报告说，他们在室内玩的时间更多，所有人都指出在社交距离期间运动功能发生了变化。
由于 COVID-19，NMD 患者的治疗常规在社交距离期间发生了变化。
