The Academic College of Tel Aviv-Yaffo, Israel.
Sheba Medical Center, Israel.
J Health Psychol. 2023 May;28(6):541-553. doi: 10.1177/13591053221134740. Epub 2022 Nov 7.
Research has demonstrated that Parkinson's disease can have adverse psychological effects on caregivers. Very few studies have focused on the experiences of spouses who are not primary caregivers or who do not identify as primary caregivers. The aim of this study was to explore the experiences of spouses who are not primary caregivers or do not identify as primary caregivers. Twelve Israeli women, spouses of men with Parkinson's disease, were interviewed using a semi-structured in-depth approach. Thematic analysis revealed five themes: before diagnosis, at diagnosis, after diagnosis, interpersonal ways of coping, and intrapersonal ways of coping. A dynamic of oscillation between confronting and avoiding losses was indicated. Non-death losses were mostly unacknowledged among spouses' social circles. Results were interpreted in the context of grieving processes after diagnosis. Findings suggest a need for psychological interventions aimed at creating safe spaces for spouses to engage in a grieving process after diagnosis.
研究表明，帕金森病会对护理人员产生不良的心理影响。很少有研究关注非主要照顾者或不认为自己是主要照顾者的配偶的经历。本研究旨在探讨非主要照顾者或不认为自己是主要照顾者的配偶的经历。采用半结构化深入访谈的方法，对 12 名以色列妇女（帕金森病男性患者的配偶）进行了访谈。主题分析揭示了五个主题：诊断前、诊断时、诊断后、人际应对方式和个体应对方式。表明存在一种在面对和回避损失之间波动的动态。非死亡损失在配偶的社交圈中大多未得到承认。研究结果在诊断后悲伤过程的背景下进行了解释。研究结果表明，需要进行心理干预，为配偶在诊断后创造一个安全的空间，让他们参与悲伤过程。
