Mohammed Kassab National Institute of Orthopaedics, Rheumatology department, La Mannouba, Tunisia.
University of Tunis El Manar Faculty of Medicine of Tunis, Tunis, Tunisia; Mohammed Kassab National Institute of Orthopaedics, Rheumatology department, La Mannouba, Tunisia.
J Pediatr Nurs. 2023 Mar-Apr;69:6-9. doi: 10.1016/j.pedn.2022.12.005. Epub 2022 Dec 29.
With the COVID-19 pandemic, health care systems are facing challenges in delivering proper patient care. Children and adolescents with juvenile idiopathic arthritis require specialized and comprehensive attention. In this context, telemedicine is an alternative that has the potential to improve access to healthcare in addition to cost savings. The objective of our study was to evaluate parents' willingness for telemedicine and factors helping to adopt this alternative in the era of COVID-19.
We undertook a cross-sectional study via structured phone interviews of parents' JIA patients as well as those with no established diagnoses. We evaluated their point of view and willingness to adhere to TM.
The study included 40 parents. The main reasons for favoring TM were avoiding hospitals during the pandemic (32.5%), time saving (27.5%) as well as avoiding school absenteeism (27.5%). The main reasons for preferring a live consultation were the fear of a possible discrepancy between physical and distant evaluation (47.5%) and the fear of the trivialization of the disease (38.5%). There was no association between preference for TM and a family history of COVID-19 (p = 0.704) as well as electronic devices afforded (p = 0.263). However, patients who lived away from hospital, not familiar with the concept of TM and with higher income adhered less to TM.
Unlike the literature data, our study showed the low prevalence of parents willing to accept TM as a model of care. This imply an urgent need for parent and patient education to promote TM especially in pediatric rheumatology.
随着 COVID-19 大流行，医疗保健系统在提供适当的患者护理方面面临挑战。患有幼年特发性关节炎的儿童和青少年需要专业和全面的关注。在这种情况下，远程医疗是一种可以改善医疗保健获取的替代方案，同时还可以节省成本。我们的研究目的是评估父母对远程医疗的意愿以及在 COVID-19 时代采用这种替代方法的帮助因素。
我们通过对 JIA 患儿及其未确诊患儿的父母进行结构电话访谈进行了横断面研究。我们评估了他们的观点和对 TM 的依从意愿。
该研究包括 40 名父母。赞成 TM 的主要原因是在大流行期间避免去医院（32.5%）、节省时间（27.5%）以及避免学生缺课（27.5%）。赞成现场咨询的主要原因是担心身体和远程评估之间可能存在差异（47.5%）以及担心疾病被轻视（38.5%）。对 TM 的偏好与 COVID-19 家族史（p=0.704）和拥有的电子设备（p=0.263）之间没有关联。然而，远离医院、不熟悉 TM 概念且收入较高的患者对 TM 的依从性较低。
与文献数据不同，我们的研究表明，愿意接受 TM 作为护理模式的父母比例较低。这意味着迫切需要对父母和患者进行教育，以促进 TM 的发展，尤其是在儿科风湿病学中。
