Department of Physiotherapy, Institute of Physical Medicine and Rehabilitation, Dow University of Health Sciences, Karachi.
Department of Physiotherapy, Sindh Institute of Physical Medicine and Rehabilitation,Karachi, Pakistan.
J Pak Med Assoc. 2023 Jan;73(1):78-82. doi: 10.47391/JPMA.6303.
To determine the relationship between gross motor function of children with cerebral palsy and quality of life of their primary caregivers.
The cross-sectional analytical study was conducted from December 2020 to August 2021 at the Sindh Institute of Physical Medicine and Rehabilitation and the Rabia Moon Trust, Karachi, and comprised children with cerebral palsy and their caregivers. The children were assessed on the basis of Gross Motor Function Measure-66 and Gross Motor Functional Classification System, while the caregivers were asked to complete the self-administered World Health Organisation Quality of Life-BREF questionnaire. All the categorical variables were presented through frequencies and percentages. Spearman's Correlation was applied to evaluate the correlation. Data was analysed using SPSS 16.
Of the 43 children, 26(60.5%) were male and 17(39.5%) were females. The overall mean age was 5.70±1.820 years. Among the caregivers, 40(93%) were females and 3(7%) were males. The mean age of the caregivers was 27.70±4.77 years. None of domains of quality of life showed significant correlation with total score of Gross Motor Function Measure-66 (p>0.05).
The disease severity among children with cerebral palsy was not a factor associated with quality of life of the caregivers. The physical health was relatively lower among the caregivers, but it was not associated with motor disabilities.
确定脑瘫儿童的粗大运动功能与主要照顾者生活质量之间的关系。
本横断面分析研究于 2020 年 12 月至 2021 年 8 月在巴基斯坦信德省物理医学与康复研究所和卡拉奇的 Rabia Moon Trust 进行,纳入脑瘫儿童及其照顾者。根据粗大运动功能测量-66 和粗大运动功能分类系统对儿童进行评估,同时要求照顾者填写世卫组织生活质量简表。所有分类变量均以频率和百分比表示。采用斯皮尔曼相关性分析评估相关性。使用 SPSS 16 进行数据分析。
43 名儿童中,26 名(60.5%)为男性,17 名(39.5%)为女性。总体平均年龄为 5.70±1.820 岁。照顾者中,40 名(93%)为女性,3 名(7%)为男性。照顾者的平均年龄为 27.70±4.77 岁。生活质量的各个领域与粗大运动功能测量-66 的总分均无显著相关性(p>0.05)。
脑瘫儿童的疾病严重程度不是影响照顾者生活质量的因素。照顾者的身体健康状况相对较低,但与运动障碍无关。