Huurman Marina Elisabeth, Pijnenborg Gerdina Hendrika Maria, Sportel Bouwina Esther, van Rijsbergen Gerard David, Hasson-Ohayon Ilanit, Boonstra Nynke
Friesland Mental Health Care Services, Leeuwarden, Netherlands.
Department of Clinical Psychology and Experimental Psychopathology, University of Groningen, Groningen, Netherlands.
Front Psychiatry. 2023 Feb 16;14:1098224. doi: 10.3389/fpsyt.2023.1098224. eCollection 2023.
Receiving the label of a psychotic disorder influences self-perception and may result in negative outcomes such as self-stigma and decreased self-esteem. The way the diagnosis is communicated to individuals may affect these outcomes.
This study aims to explore the experiences and needs of individuals after a first episode of psychosis with regard to the way in which information about diagnosis, treatment options and prognosis is communicated with them.
A descriptive interpretative phenomenological approach was used. Fifteen individuals who experienced a first episode of psychosis participated in individual semi-structured open-ended interviews on their experiences and needs regarding the process of providing information about diagnosis, treatment options and prognosis. Inductive thematic analysis was used to analyze the interviews.
Four recurring themes where identified (1) (when); (2) (what); and (3) (how). Individuals also reported that the provided information could elicit an emotional reaction, for which they would require specific attention, therefore the fourth theme is (4) .
This study provides new insights into the experiences and specific information needed by individuals with a first episode of psychosis. Results suggest that individuals have different needs regarding the type of (what), how and when to receive information about diagnosis and treatment options. This requires a tailor-made process of communicating diagnosis. A guideline on when, how and what to inform, as well as providing personalized written information regarding the diagnosis and treatment options, is recommended.
被贴上精神障碍的标签会影响自我认知，并可能导致诸如自我污名化和自尊下降等负面结果。向个体传达诊断结果的方式可能会影响这些结果。
本研究旨在探讨首次发作精神病的个体在关于诊断、治疗选择和预后的信息传达方式方面的经历和需求。
采用描述性解释现象学方法。15名经历过首次发作精神病的个体参与了关于他们在提供诊断、治疗选择和预后信息过程中的经历和需求的个人半结构化开放式访谈。采用归纳主题分析法对访谈进行分析。
确定了四个反复出现的主题：（1）（何时）；（2）（什么）；以及（3）（如何）。个体还报告说，所提供的信息可能会引发情绪反应，对此他们需要特别关注，因此第四个主题是（4）。
本研究为首次发作精神病的个体的经历和所需的特定信息提供了新的见解。结果表明，个体在关于（什么）类型、如何以及何时接收诊断和治疗选择信息方面有不同需求。这需要一个量身定制的诊断沟通流程。建议制定关于何时、如何以及告知什么的指南，并提供关于诊断和治疗选择的个性化书面信息。
