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揭开悲伤的面纱:对道德困扰与悲伤之间复杂关系的思考

Unmasking grief: Reflections on the complicated relationship between moral distress and grief.

作者信息

Wocial Lucia D, Hannan Ann

机构信息

The John J. Lynch, MD Center for Ethics, Medstar Washington Hospital Center, 110 Irving St., NW, EB 3110, Washington, DC, 20010, United States.

Riley Cheer Guild and Creative Arts Therapies, Indiana University Health/Riley Children's Health, 705 Riley Hospital Drive RM 4510, Indianapolis, IN, 46202, United States.

出版信息

Semin Fetal Neonatal Med. 2023 Aug;28(4):101445. doi: 10.1016/j.siny.2023.101445. Epub 2023 Apr 20.

DOI:10.1016/j.siny.2023.101445
PMID:37100724
Abstract

Perinatal loss often occurs in the context of discovery of a medical condition that presents patients and healthcare providers (HCPs) with difficult choices. Treatment choices are influenced by medical technology, however inescapable prognostic uncertainty, coupled with shared decision-making can lead to ethical dilemmas (Graf et al., 2023) [1]. When patients experience perinatal loss HCPs must grapple with their own emotions. Their sense of grief arises from their empathic connection with patients, bearing witness to their grief. This grief may compound HCP moral distress. Moral distress has an element of emotion, however it is more than distress in tragic situations. Moral distress is linked to HCPs feeling responsible to take action (Dudzinski, 2016) [2]. In situations of perinatal loss, it is essential to acknowledge the grief and explore how it influences the experience of moral distress. This article will reflect on the impact of HCP grief in ethically complex situation of perinatal loss.

摘要

围产期损失通常发生在发现某种医疗状况的背景下,这给患者和医疗保健提供者(HCPs)带来了艰难的选择。治疗选择受医疗技术影响,然而不可避免的预后不确定性,再加上共同决策,可能会导致伦理困境(格拉夫等人,2023年)[1]。当患者经历围产期损失时,HCPs必须应对自己的情绪。他们的悲伤感源于与患者的共情联系,见证了患者的悲痛。这种悲伤可能会加剧HCP的道德困扰。道德困扰有情感因素,但它不仅仅是悲剧情境中的困扰。道德困扰与HCPs感到有责任采取行动有关(杜津斯基,2016年)[2]。在围产期损失的情况下,承认悲伤并探讨其如何影响道德困扰的体验至关重要。本文将反思HCP悲伤在围产期损失这一伦理复杂情境中的影响。

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