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台湾居家照护中口腔癌患者家庭照顾者的负担

Burden of Family Caregivers of Patients with Oral Cancer in Home Care in Taiwan.

作者信息

Chang Tzu-Ting, Liang Shu-Yuan, Rosenberg John

机构信息

Department of Nursing, Taipei Veterans General Hospital, Taipei 112, Taiwan.

School of Nursing, National Taipei University of Nursing and Health Sciences, Taipei 112, Taiwan.

出版信息

Healthcare (Basel). 2023 Apr 12;11(8):1107. doi: 10.3390/healthcare11081107.

Abstract

Oral cancer is currently the fourth leading cause of cancer-related death in Taiwan. The complications and side effects of oral cancer treatment cause a tremendous burden on patients' family caregivers. This study explored the burden on primary family caregivers of patients with oral cancer and its related factors. One hundred and seven patients with oral cancer and their primary family caregivers were included through convenience sampling. The Caregiver Reaction Assessment (CRA) scale was employed as the primary research instrument. The primary factors of caregiver burden, in descending order, were disrupted schedules (M = 3.19, SD = 0.84), a lack of family support (M = 2.82, SD = 0.85), health problems (M = 2.67, SD = 0.68), and financial problems (M = 2.59, SD = 0.84). The CRA scores of the caregivers differed significantly in terms of education level (t = 2.57, < 0.05) and household income (F = 4.62, < 0.05), which significantly predicted caregiver burden (R2 = 0.11, F = 4.32, = 0.007). The study results provide a reference for healthcare professionals to identify the factors for family caregiver burden, as well as the characteristics of patients and family caregivers particularly vulnerable to caregiver burden, thus improving family-centred care.

摘要

口腔癌是目前台湾地区癌症相关死亡的第四大主要原因。口腔癌治疗的并发症和副作用给患者的家庭照顾者带来了巨大负担。本研究探讨了口腔癌患者的主要家庭照顾者所承受的负担及其相关因素。通过便利抽样纳入了107名口腔癌患者及其主要家庭照顾者。采用照顾者反应评估(CRA)量表作为主要研究工具。照顾者负担的主要因素,按降序排列,依次为日程安排打乱(M = 3.19,标准差 = 0.84)、缺乏家庭支持(M = 2.82,标准差 = 0.85)、健康问题(M = 2.67,标准差 = 0.68)和经济问题(M = 2.59,标准差 = 0.84)。照顾者的CRA得分在教育水平(t = 2.57,P < 0.05)和家庭收入方面(F = 4.62,P < 0.05)存在显著差异,这显著预测了照顾者负担(R2 = 0.11,F = 4.32,P = 0.007)。研究结果为医护人员识别家庭照顾者负担的因素以及特别容易承受照顾者负担的患者和家庭照顾者的特征提供了参考,从而改善以家庭为中心的护理。

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