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探索痴呆症护理的复杂性:美国黑人家属照顾者的生活体验。

Navigating the Complexities of Dementia Care: The Lived Experiences of Black American Family Caregivers.

出版信息

J Gerontol Nurs. 2023 Jun;49(6):19-26. doi: 10.3928/00989134-20230512-03. Epub 2023 Jun 1.

Abstract

Black American individuals have a higher rate of Alzheimer's disease and related dementias (ADRD) diagnoses compared to other racial/ethnic groups, and their family caregiver population is expected to increase rapidly over the next 2 decades. The current study aimed to explore Black American women's experiences caring for family members with ADRD. An interpretative phenomenology approach was used to gain a deeper understanding of the caregiving experiences of Black American women. Participants in the study were all Black American married women aged 63 to 81 years (mean = 71.3 years, = 6.6 years). Key themes that emerged from the study included: (a) , (b) , (c) , (d) , and (e) . Family caregivers require ongoing support, education, and guidance. Implications for nursing practice include focusing on family assessments, increased education and awareness, and collaboration with interdisciplinary teams to provide the best resources. [(6), 19-26.].

摘要

美国黑人患阿尔茨海默病和相关痴呆症(ADRD)的比例高于其他种族/族裔群体,预计在未来 20 年内,其家庭照顾者人数将迅速增加。本研究旨在探讨美国黑人女性照顾 ADRD 患者的经历。采用解释现象学方法深入了解美国黑人女性的照顾体验。研究中的参与者均为年龄在 63 至 81 岁之间(平均年龄 71.3 岁,标准差 6.6 岁)的美国黑人已婚女性。研究中出现的主要主题包括:(a) ;(b) ;(c) ;(d) ;和(e) 。家庭照顾者需要持续的支持、教育和指导。护理实践的意义包括关注家庭评估、增加教育和意识,以及与跨学科团队合作提供最佳资源。[(6), 19-26]。

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