Köble Katharina, Willinger Laura, Brudy Leon, Oberhoffer-Fritz Renate, Ewert Peter, Müller Jan
Institute of Preventive Pediatrics, Technical University of Munich, Munich, Germany
Institute of Preventive Pediatrics, Technical University of Munich, Munich, Germany.
Arch Dis Child. 2023 Nov;108(11):935-939. doi: 10.1136/archdischild-2023-325605. Epub 2023 Jul 18.
Resilience is a complex, yet rather unexplored topic in patients with congenital heart disease (CHD). The goal of this study was to assess and compare resilience in children with CHD with healthy controls during the COVID-19 pandemic.
From June 2020 to June 2021, 124 children with various CHDs (14.6±2.1 years, 49 girls) and 124 matched healthy controls (14.8±2.0 years, 49 girls) completed the Resilience Scale-11 short version.
Resilience was significantly reduced in children with CHD compared with healthy controls (CHD: 59.0±10.0 vs healthy controls: 64.4±6.5, p<0.001). That reduction was prominent in all CHD subgroups except those with left heart obstruction (aortic stenosis and coarctation of the aorta) and patients with transposition of the great arteries. Complex CHD had the lowest resilience of 57.6±8.4 (p<0.001) after adjusting for age and sex according to group differences. There was no difference between native CHD and CHD with open-heart surgery (native: 59.5±12.2 vs surgery: 58.8±9.3, p=0.758).
Resilience was reduced in children and adolescents with CHD compared with healthy peers during the COVID-19 pandemic. Children with complex severity appeared to be particularly affected. These findings emphasise continued efforts to provide a holistic and multidisciplinary approach in medical aftercare of these patients and their families.
复原力是先天性心脏病(CHD)患者中一个复杂但尚未充分探索的话题。本研究的目的是评估和比较新冠疫情期间先天性心脏病患儿与健康对照者的复原力。
2020年6月至2021年6月,124例患有各种先天性心脏病的儿童(14.6±2.1岁,49名女孩)和124名匹配的健康对照者(14.8±2.0岁,49名女孩)完成了复原力量表-11简版测试。
与健康对照者相比,先天性心脏病患儿的复原力显著降低(先天性心脏病组:59.0±10.0,健康对照组:64.4±6.5,p<0.001)。除左心梗阻(主动脉狭窄和主动脉缩窄)患者及大动脉转位患者外,所有先天性心脏病亚组的复原力均显著降低。根据组间差异对年龄和性别进行调整后,复杂先天性心脏病的复原力最低,为57.6±8.4(p<0.001)。单纯先天性心脏病与接受心脏直视手术的先天性心脏病患者之间无差异(单纯性:59.5±12.2,手术组:58.8±9.3,p=0.758)。
在新冠疫情期间,与健康同龄人相比,先天性心脏病患儿和青少年的复原力有所降低。病情复杂严重的儿童似乎受到的影响尤为明显。这些发现强调需要继续努力,为这些患者及其家庭的医疗后续护理提供全面的多学科方法。