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一项关于增强在家照顾技术依赖儿童的家长身心健康的机智干预措施的效果:一项随机对照试验。

Efficacy of a Resourcefulness Intervention to Enhance the Physical and Mental Health of Parents Caring for Technology-dependent Children at Home: A Randomized Controlled Trial.

作者信息

Toly Valerie Boebel, Zauszniewski Jaclene A, Wang Ming, Russell Katie N, Ross Kristie, Musil Carol M

出版信息

J Pediatr Health Care. 2024 May-Jun;38(3):337-353. doi: 10.1016/j.pedhc.2023.09.012. Epub 2023 Oct 27.

Abstract

INTRODUCTION

Parent caregivers of children who require lifesaving medical technology (e.g., mechanical ventilation, feeding tubes) must constantly maintain vigilance. Poor physical and psychological health can negatively impact their ability to do so.

METHOD

A two-arm randomized controlled trial was conducted with 197 parent caregivers of technology-dependent children (aged < 18 years) to test the efficacy of Resourcefulness Training, a cognitive-behavioral intervention that teaches social (help-seeking) and personal (self-help) resourcefulness skills, in improving key outcomes including mental health-related quality of life (HRQOL), depressive cognitions and symptoms, perceived and physiological chronic stress, burden, and physical HRQOL at five-time points.

RESULTS

Mixed-effects models using the intent-to-treat principle indicated statistically significant improvement with intervention participants at six and/or nine months postintervention for depressive cognitions, perceived stress, and physical HRQOL, controlling for covariates.

DISCUSSION

Study findings support the efficacy of Resourcefulness Training to significantly decrease perceived stress and improve psychological/physical outcomes with these vulnerable caregivers.

摘要

引言

需要救生医疗技术(如机械通气、喂食管)的儿童的家长护理人员必须时刻保持警惕。身心健康状况不佳会对他们这样做的能力产生负面影响。

方法

对197名依赖技术的儿童(年龄<18岁)的家长护理人员进行了一项双臂随机对照试验,以测试足智多谋训练的效果,这是一种认知行为干预,教授社交(寻求帮助)和个人(自助)足智多谋技能,在五个时间点改善包括心理健康相关生活质量(HRQOL)、抑郁认知和症状、感知和生理慢性应激、负担以及身体HRQOL等关键结果。

结果

使用意向性分析原则的混合效应模型表明,在控制协变量的情况下,干预参与者在干预后6个月和/或9个月时,抑郁认知、感知应激和身体HRQOL有统计学上的显著改善。

讨论

研究结果支持足智多谋训练对显著降低这些弱势护理人员的感知应激并改善心理/身体结果的有效性。

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