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自闭症谱系障碍儿童父母的韧性和家庭生活质量。

Resilience and family quality of life in parents of children with autism spectrum disorders.

机构信息

Children and Adolescent Mental Health Service, Servicio Murciano de Salud, Cartagena, Spain.

出版信息

Clin Child Psychol Psychiatry. 2024 Jan;29(1):245-258. doi: 10.1177/13591045231208577. Epub 2023 Nov 1.

Abstract

INTRODUCTION

Resilience and quality of life (QOL) can involve a positive approach in group interventions for parents of children with autism spectrum disorders (ASD). This study aims to evaluate resilience and family QOL at the start of a psychoeducational group.

METHODS

Cross-sectional assessment of resilience and family QOL used the Family Quality of Life Scale (ECVF) and 14-item Resilience Scale (RS-14).

RESULTS

The study group showed high levels of resilience. Parents considered the resources/support domain crucial, although satisfaction in this area was comparatively lower. Concerns about low satisfaction with available resources and support were notable. Gender differences were observed but not statistically significant.

DISCUSSION

The study's findings support prior research on parental resilience in families of children with ASD. The literature on the QOL for these families presents mixed findings. The importance of parental involvement in service planning is highlighted.

CONCLUSIONS

This study emphasizes the importance of resilience in parents of children with ASD, suggesting it as a potential therapeutic target. The findings underscore the need to address the perceived low quality of available resources and support. Further investigation is needed.

摘要

简介

对于自闭症谱系障碍(ASD)儿童的家长来说,韧性和生活质量(QOL)可以通过小组干预来实现积极的方法。本研究旨在评估心理教育小组开始时的韧性和家庭 QOL。

方法

使用家庭生活质量量表(ECVF)和 14 项韧性量表(RS-14)对韧性和家庭 QOL 进行横断面评估。

结果

研究组表现出较高的韧性。父母认为资源/支持领域至关重要,但在这方面的满意度相对较低。对现有资源和支持满意度低的担忧值得关注。性别差异虽然存在,但没有统计学意义。

讨论

本研究的结果支持了先前关于 ASD 儿童家庭中父母韧性的研究。关于这些家庭 QOL 的文献得出了混合的结果。强调了父母参与服务计划的重要性。

结论

本研究强调了 ASD 儿童父母的韧性的重要性,表明它是一个潜在的治疗目标。研究结果强调了需要解决现有资源和支持质量感知低下的问题。需要进一步调查。

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