Department of Pediatrics, Emory University School of Medicine, Atlanta, Georgia, USA.
Multidisciplinary Feeding Program, Children's Healthcare of Atlanta, Atlanta, Georgia, USA.
Child Care Health Dev. 2024 Jan;50(1):e13198. doi: 10.1111/cch.13198. Epub 2023 Nov 14.
Paediatric feeding disorder (PFD) is a common childhood condition, estimated to impact one in 37 American children under the age of five. Such high prevalence occurs against a backdrop of limited understanding of the community treatment landscape in the United States.
To better understand the community treatment landscape for PFD in the United States and identify provider and treatment delivery characteristics, we collected primary data through a web-based survey targeting providers from all four PFD domains (i.e., medical, nutritional, feeding skill, and/or psychosocial) between January 2022 and March 2022. The 71-item cross sectional survey focussed on patient, provider and treatment characteristics. We distributed the survey using an electronic survey tool through Feeding Matters listserv followed by solicitation to discipline specific listservs and professional networks. The analytic approach involved descriptive statistics compared across settings and provider types, focussing on respondents within the United States.
Eighty-three percent of respondents reported practicing in the United States. Most of the US sample (74.3%) involved providers from the feeding skill domain (speech-language pathologist - SLP, occupational therapist - OT) who reported delivering care through early intervention or outpatient settings using responsive and sensory based approaches. These approaches lack rigorous empirical evaluation.
Survey results suggest a need to support community providers in engagement with research activity to promote a better understanding of treatment approaches and outcomes associated with a large cohort of providers delivering care (i.e. SLPs, OTs) to patients with PFD.
儿科喂养障碍(PFD)是一种常见的儿童疾病,估计在美国五岁以下的儿童中,每 37 个就有一个患有这种疾病。如此高的患病率发生在美国对社区治疗环境缺乏了解的背景下。
为了更好地了解美国 PFD 的社区治疗环境,并确定提供者和治疗提供的特征,我们通过一项针对来自四个 PFD 领域(即医疗、营养、喂养技能和/或心理社会)的所有提供者的基于网络的调查收集了主要数据,该调查于 2022 年 1 月至 2022 年 3 月期间进行。该 71 项横断面调查侧重于患者、提供者和治疗特征。我们使用电子调查工具通过 Feeding Matters 邮件列表进行了调查分发,随后向特定学科的邮件列表和专业网络进行了征求。分析方法包括对不同设置和提供者类型进行描述性统计,重点是在美国的受访者。
83%的受访者报告在美国执业。美国样本中的大多数(74.3%)涉及来自喂养技能领域(言语-语言病理学家-SLP、职业治疗师-OT)的提供者,他们通过早期干预或门诊环境,使用响应性和基于感觉的方法提供护理。这些方法缺乏严格的实证评估。
调查结果表明,需要支持社区提供者参与研究活动,以促进更好地了解与提供护理的大量提供者(即 SLP、OT)相关的治疗方法和结果,这些提供者的服务对象是患有 PFD 的患者。