Centre for Epidemiology and Evidence-Based Practice, Department of Social and Preventive Medicine, Faculty of Medicine, Universiti Malaya, Kuala Lumpur, Malaysia.
Training Division, Ministry of Health Malaysia, Putrajaya Wilayah, Persekutuan, Malaysia.
J Palliat Care. 2024 Oct;39(4):255-263. doi: 10.1177/08258597231214485. Epub 2023 Nov 19.
Palliative care is unavailable and/or inaccessible for the majority of people in low- and middle-income countries (LMIC). This study aims to determine the availability and accessibility of palliative care services in Malaysia, a middle-income country that has made good progress toward universal health coverage (UHC).
Publicly available data, and databases of registered palliative care services were obtained from governmental and nongovernmental sources. Google Maps and Rome2Rio web-based applications were used to assess geographical disparities by estimating the median distance, travel time, and travel costs from every Malaysian district to the closest palliative care service.
Substantial variations in availability, components, and accessibility (distance, time, and cost to access care) of palliative care services were observed. In the highly developed Central Region of Peninsular Malaysia, specialty care was available within 4 km whereas in the less-developed East Coast of Peninsular Malaysia, patients had to travel approximately 46 km. In the predominantly rural East Malaysia, basic palliative care services were 82 km away and, in some instances, where land connectivity was scarce, it took 2.5 h to access care via boat. The corresponding median travel costs were USD2 (RM9) and USD23 (RM114) in Peninsular Malaysia and East Malaysia.
The stark urban-rural divide in the availability and accessibility of palliative care services even in a setting that has made good progress toward UHC highlights the urgent need for decentralization of palliative care in the LMICs. This may be achieved by capacity building and task shifting in primary care and community settings.
在中低收入国家(LMIC),大多数人无法获得或无法获得姑息治疗。本研究旨在确定马来西亚姑息治疗服务的可用性和可及性,马来西亚作为一个中等收入国家,在实现全民健康覆盖(UHC)方面取得了良好进展。
从政府和非政府来源获取了公开可用的数据和注册姑息治疗服务数据库。使用 Google Maps 和 Rome2Rio 网络应用程序来评估地理差异,通过估计从每个马来西亚地区到最近的姑息治疗服务的中位数距离、旅行时间和旅行成本。
观察到姑息治疗服务的可用性、组成部分和可及性(距离、时间和获得护理的成本)存在很大差异。在马来半岛发达的中心地区,专业护理可在 4 公里范围内获得,而在欠发达的马来半岛东海岸,患者必须行驶约 46 公里。在以农村为主的东马来西亚,基本姑息治疗服务距离为 82 公里,在某些情况下,由于土地连接稀缺,通过船只需要 2.5 小时才能获得护理。在马来半岛和东马来西亚,相应的中位数旅行成本分别为 2 美元(9 令吉)和 23 美元(114 令吉)。
即使在已在实现 UHC 方面取得良好进展的环境中,姑息治疗服务的可用性和可及性也存在明显的城乡差距,这突出表明需要在 LMIC 中实现姑息治疗的去中心化。这可以通过在初级保健和社区环境中进行能力建设和任务转移来实现。