Daltveit Siri, Kleppe Lena, Petterteig Marie Opsanger, Moi Asgjerd Litleré
Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Inndalsveien 28, 5063 Bergen, Norway.
Department of Plastic, Hand and Reconstructive Surgery, National Burn Centre, Haukeland University Hospital, PO Box 1400, 5021 Bergen, Norway.
Intensive Crit Care Nurs. 2024 Jun;82:103619. doi: 10.1016/j.iccn.2023.103619. Epub 2024 Jan 6.
To explore burn patients' and burn intensive care nurses' experiences of the photos in patient diaries.
A qualitative inductive study using thematic analysis was performed. We conducted individual interviews with six former burn patients (age range 20-77 years; four women), and two focus groups with 11 burn intensive care nurses (age range 38-61 years; all women). Data from patients and nurses were analysed together, and the findings reported according to the consolidated criteria for reporting qualitative research (COREQ).
A Norwegian burn centre where the writing of diaries including text and photos has been practiced for approximately two decades.
Three main themes were derived from the combined analysis of the two data sets: hesitating when facing photos; visualising others care; and visualising the trajectory from burn trauma to recovery. Although the patients worried beforehand about what they would see in the photos and the nurses feared to select frightening photos, the photos were welcome, and several patients said they would have liked even more. The photos filled in gaps of memory, told more than words, and did not lie. Photos of family, friends or staff demonstrated shared actions that supported memories and recovery.
Both the burn patients and the burn intensive care nurses considered photos to be an essential part of the diary that gave context and provided a factual presentation of the patients' pathway of treatment, care and recovery.
Tailored information about photo content should be offered to patients before a diary is handed over to them. Nurses should attempt to include photos covering the patients' entire stay at the burn centre, as well as photos of family, friends and staff. Individual nurses should be supported in their practical selection of photos for the diary.
探讨烧伤患者及烧伤重症监护护士对患者日记中照片的体验。
采用主题分析法进行定性归纳研究。我们对6名曾患烧伤的患者（年龄范围20 - 77岁；4名女性）进行了个体访谈，并对11名烧伤重症监护护士（年龄范围38 - 61岁；均为女性）进行了2次焦点小组访谈。对患者和护士的数据进行了综合分析，并根据定性研究报告的统一标准（COREQ）报告研究结果。
挪威的一家烧伤中心，撰写包含文字和照片的日记已实行了约二十年。
对两组数据集的综合分析得出了三个主要主题：面对照片时的犹豫；想象他人的关怀；以及想象从烧伤创伤到康复的历程。尽管患者事先担心在照片中会看到什么，护士也担心挑选出吓人的照片，但照片还是受到欢迎的，几名患者表示他们甚至希望有更多照片。照片填补了记忆空白，比文字传达的信息更多，而且不会说谎。家人、朋友或工作人员的照片展示了共同的行动，有助于记忆和康复。
烧伤患者和烧伤重症监护护士都认为照片是日记的重要组成部分，它能提供背景信息，并真实呈现患者的治疗、护理和康复过程。
在将日记交给患者之前，应向其提供有关照片内容的定制信息。护士应尽量纳入涵盖患者在烧伤中心整个住院期间的照片，以及家人、朋友和工作人员的照片。应支持护士在实际为日记挑选照片时的工作。
