Wheeler Bella, Williams Oli, Meakin Becki, Chambers Eleni, Beresford Peter, O'Brien Sarah, Robert Glenn
Nuffield Department of Primary Health Care Sciences, University of Oxford, Radcliffe Primary Care Building, Radcliffe Observatory Quarter, Woodstock Road, Oxford, OX2 6GG, UK.
Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, 57 Waterloo Road, Waterloo, SE1 8WA, UK.
Res Involv Engagem. 2024 Jan 29;10(1):15. doi: 10.1186/s40900-024-00548-4.
Some research has been undertaken into the mechanisms that shape successful participatory approaches in the context of efforts to improve health and social care. However, greater attention needs to be directed to how partnerships between researchers and user-led organisations (ULOs) might best be formed, practiced, managed, and assessed. We explored whether political economist Elinor Ostrom's Nobel prize winning analysis of common pool resource management-specifically eight principles to enhance collaborative group working as derived from her empirical research-could be usefully applied within a user-led project aiming to co-design new services to support more inclusive involvement of Disabled people in decision-making processes in policy and practice.
Participant observation and participatory methods over a 16-month period comprising observational notes of online user-led meetings (26 h), online study team meetings (20 h), online Joint Interpretive Forum meetings (8 h), and semi-structured one-to-one interviews with project participants (44 h) at two time points (months 6 and 10).
Initially it proved difficult to establish working practices informed by Ostrom's principles for collaborative group working within the user-led project. Several attempts were made to put a structure in place that met the needs of both the research study and the aims of the user-led project, but this was not straightforward. An important shift saw a move away from directly applying the principles to the working practices of the group and instead applying them to specific tasks the group were undertaking. This was a helpful realisation which enabled the principles to become-for most but not all participants-a useful facilitation device in the latter stages of the project. Eventually we applied the principles in a way that was useful and enabled collaboration between researchers and a ULO (albeit in unexpected ways).
Our joint reflections emphasise the importance of being reflexive and responsive when seeking to apply theories of collaboration (the principles) within user-led work. At an early stage, it is important to agree shared definitions and understanding of what 'user-led' means in practice. It is crucial to actively adapt and translate the principles in ways that make them more accessible and applicable within groups where prior knowledge of their origins is both unlikely and unnecessary.
在改善健康和社会护理的努力中,已经对塑造成功参与式方法的机制进行了一些研究。然而,需要更加关注如何最好地形成、实践、管理和评估研究人员与用户主导组织(ULO)之间的伙伴关系。我们探讨了政治经济学家埃莉诺·奥斯特罗姆关于共同池资源管理的诺贝尔奖获奖分析——具体而言,是她从实证研究中得出的增强协作团队合作的八项原则——是否能在一个由用户主导的项目中得到有效应用,该项目旨在共同设计新服务,以支持残疾人更全面地参与政策和实践中的决策过程。
在16个月的时间里采用参与观察和参与式方法,包括对在线用户主导会议(26小时)、在线研究团队会议(20小时)、在线联合解释论坛会议(8小时)的观察记录,以及在两个时间点(第6个月和第10个月)对项目参与者进行的半结构化一对一访谈(44小时)。
最初,事实证明,要在用户主导的项目中依据奥斯特罗姆的协作团队合作原则来建立工作实践是困难的。为建立一个既满足研究需求又符合用户主导项目目标的结构进行了多次尝试,但这并非易事。一个重要的转变是,不再直接将这些原则应用于团队的工作实践,而是将其应用于团队正在开展的特定任务。这一认识很有帮助,使得这些原则在项目后期对大多数(但并非所有)参与者而言成为了一种有用的促进手段。最终,我们以一种有用的方式应用了这些原则,并促成了研究人员与一个用户主导组织之间的合作(尽管方式出人意料)。
我们的共同思考强调了在用户主导的工作中应用协作理论(这些原则)时保持反思和响应的重要性。在早期阶段,就“用户主导”在实践中的含义达成共同的定义和理解非常重要。积极调整和转化这些原则,使其在对其起源没有先验知识且也无必要的群体中更易于理解和应用,这至关重要。