Symptoms Biology Unit, Division of Intramural Research, National Institute of Nursing, Research, National Institutes of Health, Bethesda, MD, USA.
National Institutes of Health Library, Office of Research Services, Office of the Director, National Institutes of Health, Bethesda, MD, USA.
Syst Rev. 2024 Apr 4;13(1):102. doi: 10.1186/s13643-024-02498-0.
Patient self-reporting of health-specific information, including symptoms, allows healthcare providers to provide more timely, personalized, and patient-centered care to meet their needs. It is critical to acknowledge that symptom reporting draws from the individual's unique sociocultural background influencing how one perceives health and illness. This scoping review will explore whether racial groups with 4 chronic diseases (cardiovascular diseases, respiratory diseases, cancers, and diabetes) differ in self-reporting of psychoneurophysical (PNP) symptoms. The PNP symptoms of interest include depressive symptoms, fatigue, anxiety, pain, cognitive impairment, sleep impairment, mood impairment, irritability, and shortness of breath.
Four databases will be searched by a biomedical librarian: CINAHL Plus (EBSCOhost), Embase (Elsevier), PubMed (NLM), Web of Science: Core Collection (Clarivate Analytics), and limited to publications written in the English language. Two independent reviewers will screen the records' title, abstract, and then full text and extract the data from included articles using Covidence. A third reviewer will be used for resolving disagreements. Included articles must comprise adult patients with at least one of the specified chronic diseases who self-report at least one of the specified PNP symptoms. Studies that used clinician-administered questionnaires or obtained symptom responses from primary caregiver or patient designee will be excluded. Articles on patient-reported functionality or perceived quality of life will also be excluded from the review. Two reviewers will independently extract data (e.g., demographics, study design, racial group, chronic disease, measure/scale used for self-report) from each included article using Covidence and Microsoft Excel for data cleaning and analyses.
This scoping review may potentially identify the relevant and practical implications related to clinical decision-making and health outcomes for patients experiencing the psychoneurophysical symptoms included in this study. The authors will present how the results can be utilized in clinical practice, health policy, and research planning.
The protocol was registered on Open Science Framework (OSF) at: https://osf.io/ps7aw.
患者自我报告健康相关信息，包括症状，使医疗保健提供者能够提供更及时、更个性化和以患者为中心的护理，以满足他们的需求。必须认识到，症状报告源于个人独特的社会文化背景，影响一个人对健康和疾病的感知。本范围综述将探讨患有 4 种慢性病（心血管疾病、呼吸系统疾病、癌症和糖尿病）的种族群体在自我报告心理神经生理（PNP）症状方面是否存在差异。感兴趣的 PNP 症状包括抑郁症状、疲劳、焦虑、疼痛、认知障碍、睡眠障碍、情绪障碍、易怒和呼吸急促。
一名生物医学图书馆员将在四个数据库中搜索：CINAHL Plus（EBSCOhost）、Embase（Elsevier）、PubMed（NLM）、Web of Science：Core Collection（Clarivate Analytics），并仅限于以英语撰写的出版物。两名独立的审查员将筛选记录的标题、摘要，然后是全文，并使用 Covidence 从纳入的文章中提取数据。将使用第三名审查员解决分歧。纳入的文章必须包含至少有一种指定慢性病的成年患者，并且自我报告至少有一种指定的 PNP 症状。将排除使用临床医生管理的问卷或从初级护理人员或患者指定人员获得症状反应的研究。关于患者报告的功能或感知生活质量的文章也将排除在综述之外。两名审查员将使用 Covidence 和 Microsoft Excel 独立地从每篇纳入的文章中提取数据（例如，人口统计学、研究设计、种族群体、慢性病、自我报告使用的测量/量表），并进行数据清理和分析。
本范围综述可能会确定与本研究中包含的心理神经生理症状相关的临床决策和健康结果的相关和实际意义。作者将介绍如何在临床实践、卫生政策和研究规划中利用这些结果。
该方案在 Open Science Framework（OSF）上注册：https://osf.io/ps7aw。
