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患者及其家庭成员对银屑病的认知、态度和行为

Knowledge, Attitudes and Practices Towards Psoriasis Among Patients and Their Family Members.

作者信息

Zhang Xiaolan, Du Hongyang, Liu Xiaoxiao, Liu Luyao, Zhang Tingwei

机构信息

Department of Dermatology, The First Affiliated Hospital of JinZhou Medical University, Jinzhou, 121001, People's Republic of China.

出版信息

Clin Cosmet Investig Dermatol. 2024 Apr 3;17:769-782. doi: 10.2147/CCID.S454798. eCollection 2024.

Abstract

PURPOSE

KAP studies serve to enhance health consciousness and furnish foundational data for appraising, strategizing, and enacting disease management and prejudice eradication initiatives. There remains a dearth of published studies elucidating the dimensions of knowledge, attitudes, and practices among psoriasis patients in China. To investigate the knowledge, attitudes and practices (KAP) towards psoriasis among patients and their family members in Northern China.

METHODS

This web-based, cross-sectional study was conducted among psoriasis patients and their family members through a self-administered questionnaire.

RESULTS

Among patients (n=260), their mean KAP scores were 9.76±5.69 (range: 0-19), 35.64±11.48 (range: 14-70), and 56.73±10.98 (range: 16-80), respectively. Among family members (n=237), their mean KAP scores were 11.93±5.34 (range: 0-19), 35.80±4.34 (range: 8-40), and 37.04±4.38 (range: 8-40), respectively. Structural equation modeling (SEM) analysis for patients indicated significant and negative path relations between knowledge and attitudes (β=-2.271, P<0.001), and between knowledge and practice (β=-0.398, P<0.001). Extended SEM analysis, which divides knowledge into K1, K2, and K3 parts, showed negative path relations between K3 and attitude (β=-1.300, P=0.002), between attitude and practice (β=-0.634, P<0.001). Moreover, SEM for family members showed positive path relations between knowledge and attitude (β=1.536, P<0.001), between attitude and practice (β=0.682, P<0.001).

CONCLUSION

Patients in Northern China demonstrated insufficient knowledge, negative attitude, and proactive practice, while their family members had insufficient knowledge, positive attitude, and proactive practice toward psoriasis. It is recommended to implement educational interventions addressing knowledge gaps among patients and families.

摘要

目的

知识、态度与实践(KAP)研究有助于提高健康意识,并为评估、制定和实施疾病管理及消除偏见举措提供基础数据。目前仍缺乏已发表的研究来阐明中国银屑病患者的知识、态度和实践维度。本研究旨在调查中国北方银屑病患者及其家庭成员对银屑病的知识、态度和实践情况。

方法

本研究通过网络横断面调查的方式,采用自填式问卷对银屑病患者及其家庭成员进行调查。

结果

患者组(n = 260)的知识、态度和实践平均得分分别为9.76±5.69(范围:0 - 19)、35.64±11.48(范围:14 - 70)和56.73±10.98(范围:16 - 80)。家庭成员组(n = 237)的知识、态度和实践平均得分分别为11.93±5.34(范围:0 - 19)、35.80±4.34(范围:8 - 40)和37.04±4.38(范围:8 - 40)。患者组的结构方程模型(SEM)分析显示,知识与态度之间存在显著的负向路径关系(β = -2.271,P < 0.001),知识与实践之间也存在负向路径关系(β = -0.398,P < 0.001)。将知识分为K1、K2和K3三部分的扩展SEM分析显示,K3与态度之间存在负向路径关系(β = -1.300,P = 0.002),态度与实践之间存在负向路径关系(β = -0.634,P < 0.001)。此外,家庭成员组的SEM分析显示,知识与态度之间存在正向路径关系(β = 1.536,P < 0.001),态度与实践之间存在正向路径关系(β = 0.682,P < 0.001)。

结论

中国北方的银屑病患者对疾病的知识掌握不足、态度消极,但实践较为积极;而他们的家庭成员对疾病的知识掌握不足、态度积极且实践较为积极。建议针对患者及其家庭的知识差距实施教育干预措施。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bd9e/10999187/b0e7a2783bb2/CCID-17-769-g0001.jpg

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